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Justine Hall's Fundraiser:

Team Klara and Maddie

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BENEFITING: The RYR-1 Foundation

ORGANIZER: Emily and Darren

EVENT DATE: May 14, 2016

Justine Hall

THE STORY:

Emily and Darren Pedersen wrote -

We are a team made up of friends and family, with one purpose....to find a cure for Klara and Maddie's muscle disorder. Klara and Maddie are both diagnosed with a form of RYR1-RM, a congenital muscle disorder, which there is no treatment or cure for. They have faced struggles, overcome obstacles, had to deal with unimaginable things and yet, they still have a smile on their face. They are stronger and braver than any other child we know. They miss out on so much in life because of doctors appts, therapy, hospital admissions or because it is cold season. They miss out on things because don't have the strength to do it or because it isn't wheelchair accessible. Yet, with all that adversity, they continue to fight. They continue to try. These two little girls are our motivation. We can walk, run, skip with ease. They cannot. So this team comes together to raise money for research to find a cure for Klara and Maddie. We run today because we can. We run today, so they can run tomorrow.

DONATE

To This Fundraiser

$1,105

MONEY RAISED
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  • Let's start this PARTY! Thanks in advance! Much love! - J

    $50

  • Heather D.

     

  • Annika/Pablo & Javier Vazquez

    $75

  • ❤️ Christie

    $20

  • John Santone and Gloria

    $50

  • Carmen Gilmore

    $25

  • Rincon Family

    $50

  • Carrie McNulty

     

  • Ryanne

    $25

  • Jim Leigh

    $30

  • Courtney Collins

    $30

  • Nancy Florczynski

    $20

  • Susan Ruff

    $50

  • Susan Graves

    $25

  • Diane Hatfield

    $100

  • Amanda Birk

    $25

  • Anonymous

    $25

  • Bobby and Amy G

    $30

  • Anonymous

    $25

  • Allie Schilling

    $100

  • Matthew Hicks

    $50

  • Monica French

    $50

  • Anonymous

    $25

  • Anonymous

    $50

  • Michele Petulla

    $25

  • Kelly Hite

    $25

  • Anonymous

    $25

  • Wendy Giles

    $50

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Fundraise for this Campaign

The Team: $20,043 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jackie & Scott Anderman

Amount Raised

$5,865

 

147% Raised of $4,000 Goal

Fundraiser Title

Emily and Darren Pedersen

Amount Raised

$4,808

 

48% Raised of $10,000 Goal

Fundraiser Title

John House

Amount Raised

$2,525

Fundraiser Title

Lillian Pedersen

Amount Raised

$2,390

Fundraiser Title

Michelle Cammarata

Amount Raised

$1,375

Fundraiser Title

Justine Hall

Amount Raised

$1,105

Fundraiser Title

Alexis Breining

Amount Raised

$250

Fundraiser Title

Solina Feliciano-Gonnion

Amount Raised

$250

Donor Comments

Wendy Giles

Wendy Giles

DONATION: $50

â 2 years ago

Anonymous

ANONYMOUS

DONATION: $25

2 years ago

Kelly Hite

Kelly Hite

DONATION: $25

2 years ago

Michele Petulla

Michele Petulla

DONATION: $25

2 years ago

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $25

2 years ago

Monica French

Monica French

DONATION: $50

Best of luck, J! 2 years ago

Matthew Hicks

Matthew Hicks

DONATION: $50

2 years ago

Allie Schilling

Allie Schilling

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

DONATION: $25

2 years ago