Running for Team Klara and Maddie..
March 12, 2016
Emily and Darren Pedersen wrote -
We are a team made up of friends and family, with one purpose....to find a cure for Klara and Maddie's muscle disorder. Klara and Maddie are both diagnosed with a form of RYR1-RM, a congenital muscle disorder, which there is no treatment or cure for. They have faced struggles, overcome obstacles, had to deal with unimaginable things and yet, they still have a smile on their face. They are stronger and braver than any other child we know. They miss out on so much in life because of doctors appts, therapy, hospital admissions or because it is cold season. They miss out on things because don't have the strength to do it or because it isn't wheelchair accessible. Yet, with all that adversity, they continue to fight. They continue to try. These two little girls are our motivation. We can walk, run, skip with ease. They cannot. So this team comes together to raise money for research to find a cure for Klara and Maddie. We run today because we can. We run today, so they can run tomorrow.