BENEFITING: National Organization for Rare Disorders, Inc.
EVENT DATE: Jul 28, 2012
Annette Martin wrote -
On Saturday July 28, 2012, my brother Dan and I will be swimming approximately 1.5miles in the San Francisco Bay from Alcatraz Island in the 20th Annual Alcatraz Sharkfest Swim. For her 25th birthday, we are swimming in memory of our younger sister Andrea, who sadly succumbed to complications from Aicardi Syndrome, a very rare genetic disorder, 23 years ago. Although it's been many years since Andrea's passing, there is still very little known about Aicardi Syndrome as well as many other rare genetic disorders that claim the lives of many young children worldwide.
Dan and I kindly ask that you help us raise money for The National Organization for Rare Disorders, in memory of Andrea and in honor of many children currently affected with rare genetic disorders. Our short physical feat through the cold San Francisco Bay does not compare to the suffering of many every day. Please help those affected with these rare disorders celebrate their next birthday.
Thank you in advance for your donation.
Annette & Dan