BENEFITING: Massachusetts Down Syndrome Congress
ORGANIZER: Massachusetts Down Syndrome Congress
EVENT: 2013 Boston Marathon
December 7, 2010 my beautiful twin daughters Jillian and Leah were born. Jillian was quickly taken away by NICU staff. While still in the operating room, I was told that doctors suspected that Jillian had Down Syndrome. I immediately was in shock, I was 27 years old and never thought someone my age could have a child with Down Syndrome. I was brought to my room and sat alone waiting to see my babies. I heard the door open and saw the nurse entering with a bassinet. I prayed that it was Leah because I was too fearful of the unknown to see Jillian. I was relieved when they put Leah in my arms. As I held Leah, a second nurse came in with Jillian. When the doctors told me that they suspected Jillian had Down Syndrome, they said it was because she had the "typical features." I wasn't thinking clearly and couldn't even imagine what my baby would look like. When she was placed in my arms, I cried. She was so beautiful and I fell in love instantly. Jillian is now a smart, happy, beautiful, sweet, curious and loving two year old. She loves to play with baby dolls, read books and sing songs. Jillian is learning to walk and cruises along the furniture with ease. She loves playing with her two sisters and all of her friends at play group. Jillian has changed my life dramatically. Jillian has made me learn to slow down and appreciate the small things in life. Jillian has made me a more understanding, accepting and patient person. People tell me that Jillian is so blessed to have such a loving family, but the truth is, we are even more lucky to have her. I am running the Boston Marathon for Jillian and all the other individuals with Down Syndrome in hopes that they will be appreciated, acccepted and included by society.