BENEFITING: Cure JM Foundation
EVENT DATE: Jan 17, 2016
In 2007, our daughter Mielle won the lottery... but not in a good way.
At the age of 5, she was one of the 3 children per million diagnosed each year with Juvenile Myositis (JM), an insidious autoimmune disease that causes the body’s own immune system to attack healthy cells and tissues. JM causes severe muscle pain and weakness, often to the point where the child cannot walk or even swallow, as well as disfiguring skin rashes. In severe cases it can be fatal.
For 8 years, Mielle has endured many treatments and medications, many of which are actually poison withsevere side effects of their own - severe nausea, headache and fatigue, avascular necrosis, aseptic meningitis, extreme weight gain, personality changes - just to name a few. Today, Mielle is doing well overall, but twice we have come close to weaning her off meds, andtwice the disease has flared up again. We try to stay hopeful that she will reach remission, and that someday we will find a cure.
And here's where YOU can help.
Can you make a donation right now? I can't say enough about how far your dollars will go in the hands of this organization. (Seriously, once I get started on the topic I really can't stop.) Let me know if you'd like to have that conversation - I would be delighted - but for now I'll just say that over 90% of each gift goes directly to Juvenile Myositis research and education programs, so your gift truly will bring us closer to a cure.
Thank you. Many of you have given us so much support over the years, and we are beyond grateful.
Learn more about JM at curejm.org