BENEFITING: Neurofibromatosis Incorporated Northeast
ORGANIZER: Neurofibromatosis Incorporated Northeast
EVENT: 2013 Boston Marathon
EVENT DATE: Apr 15, 2013
On April 15th I am going to be running in my fifth Boston Marathon to raise money for NF Inc. Northeast. The mission of Neurofibromatosis, Inc., Northeast is to find the cure for NF by promoting scientific research, creating awareness, and supporting those who are affected by NF. This is a cause that is very close to my heart because, as many of you already know, my oldest son Max is living with this disorder.
Max is a remarkable person that has lived his entire life with a disorder that has created many obstacles for him. He has some learning disabilities but he works so hard that he consistently makes the honors list at school. He has fine motor skill issues that make it very difficult for him to hand write his school work so that it can be read. So, instead, he has taught himself to type on a keyboard faster than most adults.
As a parent it is very rewarding and inspiring to see Max have successes in these areas but it is also heartbreaking to see how difficult the road is that he travels every day. I can't even imagine how tiring it must be to live in his skin. So this is why I am challenging myself to raise more money and run the marathon faster than I have before. My goal is to raise $4,000 and finish in under 5 hours. (For some perspective my other finishes were 5:55:21, 5:21:29, 5:33:20 and 6:03:42 in the blistering heat last year)
Please help me reach and exceed these goals by donating any amount of money that you can. Every little bit helps.
If you'd like to donate you can do so below with your credit card. If you'd like to donate by check please send a check payable to NF Inc. Northeast to 9 Bedford St, Burlington, MA 01803
Want to check in on Max? Go to: www.caringbridge.org/visit/maxwellearle
Visit my blog at runningformax.blogspot.com
Neurofibromatosis Incorporated Northeast wrote -
This will be the 25th year that Neurofibromatosis Northeast has had a team running in the Boston Marathon. Funds raised will support our mission to find treatments and the cure for neurofibromatosis by promoting scientific research, creating awareness, and providing hope and support to those who are affected by NF. Neurofibromatosis affects one in 2,500 people.
Come join our team and help provide a brighter future for the children who live with this unpredictable tumor disorder.