Jane MacKenzie wrote -My Sister-in-Law Dari died of gastric cancer in 2010 at the age of 43.
My Husband Bob, Mother-in-Law Carol, and Sister-in-Law Debi, all tested positive for the CDH1 mutation which causes HDGC. They all had their stomachs removed this past March.
All three of them were diagnosed with gastric cancer.
My 20 year old Daughter, Jessica, just received the genetic test results that she has have inherited the mutation.
She is planning to have her gastrectomy in about 5 years unless the medical community can find a valuable tool for early detection of this disease. In addition, it is now necessary for her to have in-vito fertilization so she does not pass this mutation to her children.
My 15 year old son Matthew is too young to be tested.
Please help me spread awareness to this unknown and devastating disease!