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Emily Weaver's Fundraiser:

Team Olivia

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BENEFITING: CURE CMD

Emily Weaver

THE STORY:

I am trying to raise money for Olivia, the sweet daughter of my friends Sara and Matt Bloomfield. Olivia was diagnosed with a rare form of congenital muscular dystrophy (CMD). Although kiddos with CMD will battle each day to lift their heads, bear weight on their arms and legs or attempt to navigate their lives from the confines of a wheelchair, there is significant hope in the medical community that treatments are within reach. Sara and Matt have been working with a not-for-profit called Cure CMD and a biotechnology company focused on a treatment for MDC1A to help fund and advance the initiatives for the treatments of Olivia’s condition.
I plan to run in the Kansas City Marathon 5k to raise money for Olivia and other children in her situation. 100% of the net proceeds raised for Cure CMD will go to funding research for congenital muscular dystrophy.

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