BENEFITING: Epilepsy Foundation of Metropolitan New York
EVENT DATE: Nov 09, 2013
Hi, My name is Victoria I'm 30 years old and I'm living with Epilepsy. Epilepsy is a silent disease because no one wants to talk about it most of us are often affraid of how others will treat us once they know we are living with Epilepsy due to social stigmas. But living with a condition that can be fatal is not easy and I believe it's my duty to spread awareness, the goal of this walk is to help others become aware! I do not take a moment for granted, I urge everyone to become aware of Seizure First Aid and to try and begin to understand what those of us living with Epilepsy deal with on a daily basis especially the importance of obtaining a quality of life that we desire which is often not that easy. Do you know what to do if somone is near you and has a seizure? You should! The goal for those of us living with Epilepsy is to control our seizures, everyone wants to be seizure free and it's not always that simple but it is the goal we desire to reach and there are so many options, we live in an age where we have so many medications avaliable, diet, surgery and devices we live in a time of HOPE. But there are also many risk factors living with such a serious condition often not spoken about SUDEP is the very serious reality those of us living with Epilepsy face daily, SUDEP refers to the unexplained death of an individual, with a diagnosis of epilepsy, who dies suddenly, in benign circumstances, without a structural or toxicological cause for death being found at autopsy. There may be no CURE yet for Epilepsy but there are plenty of things we as patients can do to lower our risk for SUDEP yes it is scary but not talking about it is even more scary. There are ways that patients living with Epilepsy can minimize their risk and that is why spreading awareness is so important! Epilepsy, the disorder — and the side effects of epilepsy medications — can cause problems in learning, memory and behavior, and indelibly alter development. It can also consume families, monopolizing their time, money and energy. Yet despite the number of people with epilepsy — the disorder affects more Americans than do Parkinson’s disease, multiple sclerosis and Lou Gehrig’s disease combined — it still carries a stigma that dates to ancient civilizations. Many patients, doctors and families say that stigma hampers care, public recognition and the ability to raise money for research those of us walking are doing so to put an end to the stigmas and begin to shine a light on Epilepsy Awareness. PLEASE help every penny counts and is appreciated <3 Thank you.