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Courtney Bonzey's Fundraiser:

Team Rett Boston Marathon 2012

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owner profile imageCourtney Bonzey via Crowdrise
January 17, 2012

I am excited to be running my first Boston Marathon! Please help me reach my goal of raising $5,000 for Rett Syndrome!  See more
Courtney Bonzey

THE STORY:

 

Running the Boston Marathon is something that I have wanted to do for a few years, but not until recently have I been able to find the motivation to get me through the grueling training process or a cause that has impacted my life in such a direct and unexpected way.  This past September my 2 1/2 year old niece, Elizabeth, was diagnosed with Rett Syndrome and it is such a blessing to be able to run in honor of her.  

Rett syndrome causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion. The disability can range from mild to severe. Typically children develop normally, followed by a period of regression and then they stabilize.

Elizabeth only fits some of the criteria for the diagnosis, so it is uncertain what the extent of her disability will be.  Elizabeth has already defied so many odds of this devastating diagnosis and we continuously pray that she will maintain her hand functions, keep her ability to walk, and continue to make developmental progress. To date, Elizabeth has not had any regression! 

Please support me in raising money to help researchers take one step closer to finding a cure for Rett Syndrome.  I understand that it's not always easy to find extra money laying around but I appreciate anything you can give that will help me reach my goal!

Blessings,

Courtney

 

PS- Please read on for more specific information about the clinical trial that may one day reverse Rett Syndrome!

 RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$9,752

MONEY RAISED
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  • Emily, Chris, Erin, and Owen

    $100

  • Michael Wilhelm

    $100

  • Luke, Jamee & Shea Callahan

    $500

  • Sarah and James

    $500

  • Lisandra and Mike

    $200

  • Mrs. M :)

    $30

  • Megan Breton

    $25

  • The Gusenoff Family

    $25

  • Greg&Sofia;

     

  • John C (Friend of Mo)

    $50

  • Ben and Amy Harding

    $50

  • Sean & Jules

    $100

  • Dennis and Carol Moran

    $100

  • Jackie Fagone

    $50

  • Tom and Anne O'Reilly

    $100

  • Jackie & Gordon Bass

    $50

  • Anne Garcia-Meitin

    $150

  • Janis Bennett

    $125

  • Jody Pongratz

    $50

  • Jack, Lydia, Jim and Pam Carr

    $100

  • Bill and Dorothy Koffel

     

  • Fergal and Carrie Cagney

    $20

  • The Dray Family

    $100

  • Christie and Brenda

    $75

  • Grandma and Grandpa Weaver

    $500

  • Anonymous

    $20

  • Mike Michaelson

    $40

  • Vedvyas Shanbhogue

    $50

  • Th Guy Family

    $150

  • Wolfram Sauer

    $100

  • The Daniels Family

    $50

  • Stephanie Daly

    $25

  • Mary Alyce Mercorelli

    $25

  • Aurelio & Jean Antonio

    $20

  • Henry & Mary Ann Haggerty

    $100

  • Sharon Spaulding

    $25

  • Fernando & Macristina Joves

    $30

  • The Gazard Family

    $20

  • John and Mary Ferraro

    $25

  • John Fahy

    $50

  • Dale Fohlin

    $20

  • Desiree Zicko & John Archibald

    $100

  • Clay Douglass

    $50

  • JoHannah and Jim

    $100

  • Bloomers Florist- Ken & Mike

    $100

  • Julie Zieff and family

    $20

  • Sheila and David Murphy

    $50

  • Kim Cook

    $25

  • The Reis Family

    $50

  • Ken & Elaine Picard

    $50

  • Pearl Family

    $25

  • Rob, Jen & Nicholas Antonio

    $100

  • Mary Beth Carmody

    $25

  • Cooper and Harrington Davis

    $25

  • Kelly L'Hommedieu

    $25

  • Anonymous

    $20

  • Anonymous

    $25

  • Diane B Sullivan

    $20

  • The Paget Family

    $100

  • Hal & Sue Look

    $15

  • Carol Brennan

    $25

  • Helen Curran

    $200

  • Pam & Paul Busa

    $100

  • Julie Ferland

    $25

  • Lauren Atkinson

    $50

  • Jason Brandt

    $50

  • Tom Levenson

     

  • Sally Greymont

    $50

  • Rich & Lynda Thurston

    $50

  • Chuck & Susan Whittaker

    $100

  • Roberta & Tim Daly

     

  • Courtney Moran

    $10

  • Jack Brickley and Family

    $40

  • Nancy & Bill Dome

    $25

  • Tom and Anne Gildea

    $25

  • The Devoy Family

    $100

  • Brittany Weaver

    $25

  • Sarah Aspero

    $25

  • L'Hommedieu Family

    $500

  • Grandmother and Papa

    $500

  • Cavan

    $27

  • D2 Productions

    $100

  • Ben Koffel

     

  • Elizabeth and Charlie Weaver

    $1,000

  • Carole and Greg Knox

     

  • Pete & Richelle Harrod

    $25

  • Glen & Patty Fratto

    $25

  • Mary Ann & Jack Moore

    $30

  • Kelly Knox

     

  • Luptakova family

    $100

  • Loretta Wieczner

    $30

  • Tiffany Puliafico

    $25

  • Paula, Chris & Ashtyn Daniels

    $25

  • Bob & Becky Branch

    $75

  • The Kogon Family

    $100

  • Nicole Zinni

    $50

  • Ron and Linda Ludvigsen

    $50

  • Jim & Terry Murphy

    $250

  • David & Noreen Murphy

    $20

  • Bill Young

    $20

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195% Raised of$5,000 Goal

The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised

$9,752

 

195% Raised of$5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised

$8,250

Fundraiser Title

christina oliver

Amount Raised

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised

$6,500

Fundraiser Title

Courtney Railton

Amount Raised

$6,225

Donor Comments

Bill Young

Bill Young

DONATION: $20

7 years ago

David & Noreen Murphy

David & Noreen Murphy

DONATION: $20

7 years ago

Jim & Terry Murphy

Jim & Terry Murphy

DONATION: $250

7 years ago

Ron and Linda Ludvigsen

Ron and Linda Ludvigsen

DONATION: $50

7 years ago

Nicole Zinni

Nicole Zinni

DONATION: $50

7 years ago

The Kogon Family

The Kogon Family

DONATION: $100

7 years ago

Bob & Becky Branch

Bob & Becky Branch

DONATION: $75

7 years ago

Paula, Chris & Ashtyn Daniels

Paula, Chris & Ashtyn Daniels

DONATION: $25

Go Courtney! 7 years ago

Tiffany Puliafico

Tiffany Puliafico

DONATION: $25

Kick Some Asphalt Court-O!!!! 7 years ago

Loretta Wieczner

Loretta Wieczner

DONATION: $30

You go, Courtney! The Newton South Preschool team will be rooting for you! 7 years ago