CourtneyRailton's profile image - click for profile

Courtney Railton's Fundraiser:

Team Rett Boston Marathon 2012

Courtney's Photo
Courtney's Photo
Courtney's Photo
Courtney's Photo
Courtney's Photo
Courtney's Photo
 

owner profile imageCourtney Railton via Crowdrise
March 02, 2012

I am so excited to be running the Boston Marathon on April 16. Please help me reach my goal of raising $5,000 for Rett Syndrome!  See more
Courtney Railton

THE STORY:

I truly thought my marathon days were over!  That was until I went to a fundraiser for Rett Syndrome and learned more about this disorder, its affects on families and heard how hopeful researchers are that Rett Syndrome can be reversed.  Rett syndrome is a neuro-developmental disorder seen primarily in girls and women.  Please take a few minutes to watch the video on my page and you will see for yourself how this disorder affects these girls and their families. 

I am running the Boston Marathon in honor of 12 year old Caroline Joyce. Caroline is the daughter of our friends Jane & Mike Joyce.  All the monies raised through my efforts in the Boston Marathon will be donated directly to the first clinical trial of the IGF1 growth hormone now being conducted at Children’s Hospital Boston. Initial results have been very promising, so Jane & Mike are very hopeful this will help Caroline in the near future. 

Thank you for considering a donation to this worthy cause and see you at the finish line!

Courtney Railton

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$6,225

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Will, Caroline, and Tess Railton

    $100

  • Peter, Liz, Ryan & Annie

     

  • Lois Hamilton

    $100

  • Don McNeil

    $100

  • Taylor Railton

    $450

  • Caroline Joyce & Family

    $250

  • Julie Desmond

    $100

  • Jaye, Patrick, Maeve, Ella and Roddy McGillicuddy

    $100

  • Anonymous

     

  • Lisa Evan Max and Brett

    $100

  • The Winship Family

    $50

  • Seth, Megan & Logan

    $25

  • the spauldings

    $40

  • Terran Titus

    $50

  • The Railton Family

    $1,000

  • Sarah Smith

    $25

  • ATK RYDER

    $100

  • Kelly Joslin

    $25

  • cathy minich

     

  • Dorothy Jacques

    $25

  • Brady-Doland-Lung Family

    $50

  • Jean Marie Voelger

    $50

  • Dave, Andrea, & Otis

    $50

  • The Daleys

    $100

  • The Whitney Family

     

  • Caroline & Tess

    $300

  • The Menhall Family

    $50

  • Summer and Baxter

    $50

  • The Connolly Family

    $250

  • The Steckler family

    $100

  • The Peterson Family

    $50

  • Jack, Owen & Brooke Connors

    $100

  • Christopher Family

    $100

  • Sonja Keller Bircher

     

  • The Baldwin Family

     

  • Holly

    $10

  • Debbie Railton

    $50

  • The Devlin Family

    $100

  • Matt, Betsy, Grace, and Jack

    $100

  • The Fox Family

     

  • The Horigans

    $100

  • Arch Re Fac Matching Gift

    $1,000

  • Arch Re Fac Mathing Gift

    $400

  • baker, drew, nolan hurley

    $75

  • Devaney Kids

     

  •  
  •  
  •  

The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised

$9,752

 

195% Raised of$5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised

$8,250

Fundraiser Title

christina oliver

Amount Raised

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised

$6,500

Fundraiser Title

Courtney Railton

Amount Raised

$6,225

Donor Comments

Devaney Kids

Devaney Kids

7 years ago

baker, drew, nolan hurley

baker, drew, nolan hurley

DONATION: $75

good luck Mrs. Railton--you'll do great!!! 7 years ago

Arch Re Fac Matching Gift

Arch Re Fac Matching Gift

DONATION: $1,000

7 years ago

Arch Re Fac Mathing Gift

Arch Re Fac Mathing Gift

DONATION: $400

7 years ago

The Horigans

The Horigans

DONATION: $100

7 years ago

The Fox Family

The Fox Family

We'll be cheering for you on the sidelines! 7 years ago

Matt, Betsy, Grace, and Jack

Matt, Betsy, Grace, and Jack

DONATION: $100

What a great cause, Court. Good luck! 7 years ago

The Devlin Family

The Devlin Family

DONATION: $100

7 years ago

Debbie Railton

Debbie Railton

DONATION: $50

7 years ago

Holly

Holly

DONATION: $10

7 years ago