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Gordon Christie's Fundraiser:

Team Rett Boston Marathon 2012

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Gordon Christie via Crowdrise
March 14, 2012

I am running this race in honor of my daughter Catherine Cecilia who faces the challenges of Rett syndrome every day.  See more
Gordon Christie

THE STORY:

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$436

MONEY RAISED
  •  
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  •  
  •  
  •  
  •  
  •  
  •  
  • Gordon Christie

    $50

  • Grandma Fig

    $50

  • Catherine Christie

    $11

  • Catherine Christie

    $25

  • Sister Tracy

    $45

  • Paul Mckidd

    $20

  • Dre

    $15

  • dinh

    $50

  • Raquel Melendez

    $20

  • Barry and Karen O'Brien

    $50

  • Dionne Christie-Cunningham

    $50

  • Mark Junkans

    $50

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  •  
  •  

The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised

$9,752

 

195% Raised of $5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised

$8,250

Fundraiser Title

christina oliver

Amount Raised

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised

$6,500

Fundraiser Title

Courtney Railton

Amount Raised

$6,225

Donor Comments

Mark Junkans

Mark Junkans

DONATION: $50

6 years ago

Dionne Christie-Cunningham

Dionne Christie-Cunningham

DONATION: $50

6 years ago

Barry and Karen O'Brien

Barry and Karen O'Brien

DONATION: $50

6 years ago

Raquel Melendez

Raquel Melendez

DONATION: $20

6 years ago

dinh

dinh

DONATION: $50

Kill it in Boston Gordon 6 years ago

Dre

Dre

DONATION: $15

6 years ago

Paul Mckidd

Paul Mckidd

DONATION: $20

6 years ago

Sister Tracy

Sister Tracy

DONATION: $45

I love my niece, Catherine, who lives with Rett every day and smiles through it. Hugs! 6 years ago

Catherine Christie

Catherine Christie

DONATION: $25

6 years ago

Catherine Christie

Catherine Christie

DONATION: $11

6 years ago