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lori mitchener's Fundraiser:

Team Rett Boston Marathon 2012

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owner profile imagelori mitchener via Crowdrise
April 02, 2012

This one is for Eric  See more
lori mitchener

THE STORY:

This is my second running of the Boston Marathon for Team Rett.  Last year we raised enough money for the trial to get started, and this year we need to keep phase II going!  I run for Ava and Juliana, twin 7 year old Rett Heroes.   These two girls, and their family, have taught me so much about love, patience, strength, and hope.  

Thank you to everyone who donated last year, and those those that will this year.  Running is easy, battling Rett is not, so let's raise 5,000 at least and let's do it in honor of Eric.  Ava and Juliana lost their Dad, Eric, this summer.  Eric was an exemplary father, and a staunch advocate for Rett research.  So while I say I am running for him, just as I hope you donate in his honor, he would be the very first to correct me when I say this one's for Eric.  He would say, "No, this one is for all the Girls!"

 

 

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$4,536

MONEY RAISED
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  • zoe blaize phineas

     

  • Scott Johnsen

    $20

  • Anna & Isabella DeCotis

    $50

  • Anonymous

    $50

  • Joseph and Samantha repetto

    $20

  • Joe Assenza

    $40

  • Tim Allen

    $25

  • THE CARCOOP

    $25

  • lawrence walker

    $200

  • Shawn Tempesta

    $100

  • Sarah Atiya

    $25

  • Diana

    $100

  • Frank Brachanow

    $100

  • Michael Doherty

    $25

  • Colin Gleason

    $10

  • Hannah from Ohio

    $10

  • Patrick Gibbs

    $20

  • Tom Patch

    $50

  • Jake Gannon

    $100

  • CrowdRise

    $25

  • The Barrette Family

    $30

  • Jerrilyn Rinaldi

    $25

  • The Hemley Family

    $50

  • Eric's Mom

    $100

  • Eric Fleisch and Rebecca Hartman

    $200

  • Trisha & Betty

    $50

  • Gram and Pop

    $200

  • CrowdRise

    $25

  • Sensei Janice-Cervizzi's Martial arts

    $25

  • Chad Standley

    $25

  • Sean M Masters

    $85

  • Carolynne

    $50

  • Tika

     

  • The Graves family

    $50

  • Deborah Sacco-Invencio

    $20

  • Galicious

    $50

  • Kathleen Bustin

    $10

  • Carol Dennehy

    $50

  • Mark Wisnes

    $50

  • Kerianne Lynch

    $25

  • Jeff Strong

    $20

  • Ava & Sophia Melo

    $50

  • mary lasdin

     

  • Brenda Callagy

     

  • Sue Chaisson

     

  • laurie hayes

     

  • marilyn lastinger

     

  • Michele Gwozdz

     

  • Patricia Moda

     

  • Ann Ferrante

     

  • Thomas Frost

     

  • Melissa Grew

     

  • Kelly

     

  • Amy Carucci

     

  • Terri Vittozzi

     

  • Sabina Sawyer

     

  • Richard Lasdin

     

  • Michelle Zelikman

     

  • Nancy Carpenter

     

  • Maureen Chaisson

     

  • Dawn Gonthier

     

  • Deb Luciano

     

  • Helen Hampoian

     

  • Pamela McIntyre

     

  • Pamela Feffer

     

  • Debra Maffeo

     

  • Nancy Pelmas

     

  • anonymous

     

  • Deborah Cronin

     

  • Joseph Carregal

     

  • James Waddell

    $20

  • Kathleen Roy

    $50

  • The Gladu family

     

  • Lasdin Family

     

  • Shanna Pagliuca

    $25

  • Sarah Petitto

    $50

  • LT and Mrs. Paul Elliott

    $50

  • Kerri Shaw

    $25

  • Matt Johnson

    $30

  • Eric Jones's friend, Linda

     

  • Jennifer traino

    $20

  • Anonymous

     

  • katherine winters

    $50

  • patricia shediac

    $50

  • pauline timmons

    $100

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The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised

$9,752

 

195% Raised of$5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised

$8,250

Fundraiser Title

christina oliver

Amount Raised

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised

$6,500

Fundraiser Title

Courtney Railton

Amount Raised

$6,225

Donor Comments

pauline timmons

pauline timmons

DONATION: $100

7 years ago

patricia shediac

patricia shediac

DONATION: $50

7 years ago

katherine winters

katherine winters

DONATION: $50

7 years ago

Anonymous

ANONYMOUS

7 years ago

Jennifer traino

Jennifer traino

DONATION: $20

Good luck Lori ill be there today in town!! 7 years ago

Eric Jones's friend, Linda

Eric Jones's friend, Linda

Good luck and blessings upon you both 7 years ago

Matt Johnson

Matt Johnson

DONATION: $30

Run Lori Run 7 years ago

Kerri Shaw

Kerri Shaw

DONATION: $25

I'm amazed by all that you do! Beautiful Ava is in my son Danny's 1st grade class and when I go in to help out...her smile melts my heart! Keep up the good work Lori!! 7 years ago

LT and Mrs. Paul Elliott

LT and Mrs. Paul Elliott

DONATION: $50

7 years ago

Sarah Petitto

Sarah Petitto

DONATION: $50

7 years ago