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RETT SYNDROME ASSN OF MASSACHUSETTS' Fundraiser:

Team Rett Boston Marathon 2013

RETT SYNDROME ASSN OF MASSACHUSETTS' Photo

THE STORY:

 

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

Team Rett 2013 will be raising funds for Dr.Yun Li's research project at The Whitehead Institute, MIT called Modeling Rett syndrome using TALEN technology in human pluripotent stem cells.

Dr. Li will establish new models of Rett syndrome using genetically engineered human pluripotent stem cells. These cells will serve as an unlimited source of disease-specific human materials. These cells will be used to study the molecular, cellular, biochemical and electrophysiological aspects of Rett cells and how they react to existing drugs at a very fast pace. Rather than using mouse models which is an arduous process, hundreds of drugs can be tested with these stem cells to see which ones have positive effects. As a result, therapeutic strategies to prevent, delay and reverse Rett progression may be developed much more quickly, giving parents tremendous hope for a better future for their daughters.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

$128,619

MONEY RAISED
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  • Allison

    $50

  • The Kellys

    $100

  • Steven Ralston & Rob Hair

    $200

  • Bob and Laura France

    $262

  • Jay, Leslie, Ben

     

  • Loren Ellefson

    $350

  • Anonymous

     

  • Linda Gloski

    $50

  • The Athanassiou family

    $500

  • Sweet baby girl Elena

    $100

  • Anonymous

    $50

  • Ethan and Lori Cash

    $100

  • JP Cantos

    $50

  • Rene Davis

    $25

  • Julie Ferland

    $20

  • Denise and Chuck Mari

    $50

  • Lars and Dyan Johnson

    $25

  • Melissa & Bob Evans

     

  • Kris Eriksen

     

  • Emily & John Fahy

    $100

  • Rob Fox and family

    $50

  • Lori McTernan and family

    $250

  • Ann-Marie Kinzler

    $50

  • Dana Bisbee

    $25

  • Shannon Panszi & family

     

  • Ross Williams (friend of Mary and Tim Groves )

    $40

  • Seth, Kristine & Sylvie

     

  • Jennifer Bertolet

     

  • Heidi Fogarty

    $50

  • Brandi & Mike Fretwell

    $50

  • Karnes Family

     

  • Gene Swift

     

  • Peter & Leila Milley

     

  • Nancy Brown

    $200

  • Rob, Sara amd Jane Bullen

    $25

  • Dorothy and Richard Smith

    $50

  • The Furlong Family

    $25

  • Lela Digenis

    $100

  • Mary McTernan

    $100

  • Tiki Zima

    $50

  • Mike Wilhelm

    $50

  • Vikki Macomber

    $25

  • Donna and Michael Brown

    $25

  • Evie Lynn Swan

    $100

  • Alicia Cortez valerio

    $25

  • Lori Gondry

    $50

  • Deborah Cruz

     

  • Dick and Mary Wood

    $100

  • Alicia

    $10

  • Courtney, Jen, and Maddy

     

  • The Golab Family

     

  • Marybeth

    $50

  • Mike Damia

    $100

  • Marie & Joe

    $50

  • Carol Brennan

    $50

  • Jackie Bass

    $25

  • Jackie Zywocinski

    $20

  • Kimberly and Brian Shapiro

     

  • Kuo Family

     

  • A mile for mile match!

    $350

  • Leslie Tate

    $15

  • Brad Scriber

    $50

  • Charlotte Woods

    $50

  • Jen thompson

    $25

  • Patrick Ryan

     

  • Ron and Martha Schoener

    $25

  • Marshall Richter

    $25

  • The Cook Family

    $20

  • Lynn & Irv Wilson

    $25

  • Beth and Dave Sambuceti

    $75

  • Hannah Varbel

    $200

  • Katie Windle & Steve McDermid

    $100

  • Mike & Judy Walsh

    $20

  • Wendy Infantino

    $50

  • George & Carolyn Shoben

    $25

  • Guy and Debbe Bartleson

    $100

  • Eduardo and Yolanda Gonzalez

    $25

  • Julie and Douglas Croll

    $50

  • Paige and Tori Purcell

    $10

  • Jane Lane

    $50

  • Kristin Gillis Hartnett

    $50

  • The Zalfa family

    $25

  • Robert & Lisa Koppenhofer

    $25

  • Fred Hicks

    $25

  • Terri marino and Shai Patel

    $100

  • Jamie Nicholson

    $50

  • Jack & Mary Ann Moore

    $30

  • Bloomers Florist

    $50

  • Don & Heidi Field

     

  • Paula Anderson

    $100

  • Zach and Cindy Taylor

    $500

  • Tom and Loranne

    $200

  • Kristin & Jonathan Gilzean

     

  • Eagan Family

    $100

  • James Kanter

    $50

  • Teacher Diane

     

  • Pam Thomas

    $50

  • Sarah & M.T.

    $250

  • Anonymous

    $10

  • Gail Severt

    $25

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Boston Marathon News on Twitter John Hancock on Facebook Go to the 2013 Boston Marathon Event Page

The Team: $128,619 TOTAL RAISED SO FAR

Fundraiser Title

Jenn Seney

Amount Raised

$11,607

 

46% Raised of $25,000 Goal

Fundraiser Title

Erica Robertson

Amount Raised

$11,148

 

223% Raised of $5,000 Goal

Fundraiser Title

Maren & Ryan Layton

Amount Raised

$10,986

 

110% Raised of $10,000 Goal

Fundraiser Title

Daniel Warner

Amount Raised

$9,931

Fundraiser Title

Geoff Gillard

Amount Raised

$9,785

 

196% Raised of $5,000 Goal

Fundraiser Title

Zenaida Jimenez

Amount Raised

$9,570

Fundraiser Title

KAREN OBRIEN

Amount Raised

$8,476

 

170% Raised of $5,000 Goal

Fundraiser Title

Lee Ann Coburn

Amount Raised

$7,731

 

155% Raised of $5,000 Goal

Donor Comments

Gail Severt

Gail Severt

DONATION: $25

1 year ago

Anonymous

ANONYMOUS

DONATION: $10

4 years ago

Sarah & M.T.

Sarah & M.T.

DONATION: $250

Go Team Little Goose! We love you guys and can't wait for the stroll. If we're able to make it we'll bring the Mimosas!! 4 years ago

Pam Thomas

Pam Thomas

DONATION: $50

4 years ago

Teacher Diane

Teacher Diane

Happy, happy birthday, sweetest girl! I think of you often. 4 years ago

James Kanter

James Kanter

DONATION: $50

4 years ago

Eagan Family

Eagan Family

DONATION: $100

Matt, Jenn, Judging by Abby's big smile, she is surrounded by a loving family every moment of every day. Impressive run by a great Dad. Greg and Amy Eagan 4 years ago

Kristin & Jonathan Gilzean

Kristin & Jonathan Gilzean

Just love those Gillards! 4 years ago

Tom and Loranne

Tom and Loranne

DONATION: $200

Way to go Lee Ann!! 4 years ago

Zach and Cindy Taylor

Zach and Cindy Taylor

DONATION: $500

4 years ago