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Krissy Nowell's Fundraiser:

Team Rett Boston Marathon 2013

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Krissy Nowell via Crowdrise
March 04, 2013

Please think of others today and help us fight against Rett Syndrome. Any donation is greatly appreciated. Happy 6th Birthday, Haylei!!  See more
Krissy Nowell

THE STORY:

I am the proud teacher of a six year old with Rett Syndrome.  She is definitely the best teacher I have ever had in my life.  I had never heard of the term “Rett Syndrome" before meeting her.  “By learning you can teach, by teaching you will understand”.  I didn’t know how to teach until the day I met her.  She has taught me to always work hard, try my best, and never give up. 

I am a very passionate, enthusiastic, and dedicated special education teacher.  I truly love my job and look forward to going to work every day.  Last year was my first experience working with a child with Rett Syndrome.  My student with Rett Syndrome has had a tremendous impact on my life and has made me more determined than ever to help her and others with this condition.  She continues to inspire me to strive for excellence.  She forces me to think outside of the box all of the time.  We are well connected and share a special bond together; Her eyes tell me that she knows I understand her, believe in her, and I won’t give up on her no matter what.   

On April 15, 2013, I will be running in the Boston Marathon for the Rett Syndrome Association of Massachusetts.   Running the 117th Boston Marathon is my way of giving back to my student and many others with Rett Syndrome.

Please remember that all donations are tax deductible.  You can make your payment online or mail a check to me @ 7 Frank Street, Wakefield, MA 01180.  Please make your check payable to the Rett Syndrome Association of Massachusetts.  Thank you very much for your support!!

 

RETT SYNDROME ASSN OF MASSACHUSETTS wrote -

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

The funds raised through the Boston Marathon will be given to a research project, soon to begin, at MIT. Dr. Li is a postdoctoral fellow in the lab of Dr. Rudolf Jaenisch at MIT.

Modeling Rett syndrome using TALEN technology in human pluripotent stem cells

Dr. Li will establish new models of Rett syndrome using genetically engineered human pluripotent stem cells. These cells will serve as an unlimited source of disease-specific human materials. These cells will be used to study the molecular, cellular, biochemical and electrophysiological aspects of Rett cells and how they react to existing drugs at a very fast pace. Rather than using mouse models which is an arduous process, hundreds of drugs can be tested with these stem cells to see which ones have positive effects. As a result, therapeutic strategies to prevent, delay and reverse Rett progression may be developed much more quickly, giving parents tremendous hope for a better future for their daughters

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome! 

$6,319

MONEY RAISED
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  • candy bar sales

    $3

  • candy bar sales

    $14

  • Your Pre-school Class

    $20

  • Anonymous

    $100

  • Picture money

    $60

  • candy sales

    $10

  • candy bar sales

    $36

  • Mystic Mikey H.

    $50

  • 1-800-GOT-JUNK?

    $100

  • The Gifford Family

    $25

  • Auntie Martine

    $50

  • George Hamilton

    $25

  • Cammy Can

    $26

  • Lois Markham

    $25

  • Jeff & Susie Turner

    $25

  • Eddy and Elizabeth

    $50

  • Anonymous

    $50

  • Katie H.

    $26

  • Paula Marroni

    $50

  • Sharon Rose Alterman

    $80

  • Judith Remeika

    $100

  • Chrissy Pickering

    $20

  • NMTW Community Credit Union

    $100

  • Marge Heck

    $25

  • Young World Academy, Salem MA

     

  • Melissa & Tim

    $25

  • Marian McDonald

    $20

  • Ashley Ferrari

    $25

  • The Nowell Jr. Family

    $50

  • Jane McNally

    $25

  • Nancy Ellis

    $50

  • Nancy Bourque

    $25

  • Doug and Nancy Macallister

    $5

  • Dolly Valerio

    $25

  • Michelle Murphy

    $15

  • George Simpson

    $15

  • Jenn F.

    $20

  • Catherine S.

     

  • DONNA PLACHOWICZ

    $50

  • robert+daisy Mitchell

    $25

  • Brenda Lavoie

    $10

  • Mary Lambert

    $40

  • Paul Longergan and Anne Tallon

    $15

  • Angela Smith

    $5

  • Heather Johnson

    $10

  • Donna Pomerleau

    $10

  • Robert Sheehan Jr.

    $15

  • Carol Sheehan

    $20

  • Janice Coughlin

    $30

  • Amy and Rob Brogna

    $100

  • Takayuki Nakano

    $20

  • Sharon Mckenna

    $37

  • Sue and Dave Batson

    $50

  • Thomas Nowell Valerio

    $30

  • Tricia Casale

    $25

  • Alli Zurlnick

    $20

  • Lynne Batty

    $20

  • Laura Norquist

    $10

  • Shari McLeod

    $10

  • Tracy Lovasco

    $10

  • Bethany Nelson & Family

    $20

  • The Lando's

    $25

  • Dave Estep

    $50

  • mama & papa

    $100

  • Aileen

    $5

  • Colette McGonagle

    $40

  • Tony Gesamondo

    $500

  • Fundraiser Luncheon

    $1,105

  • Auntie Johanne Spooner

    $100

  • Alicia Furbush

    $20

  • Jude Jorge

    $20

  • Mary DiMaria, Bank of America Matching Gift Program

    $25

  • Sarah Brandt

    $50

  • Lou Ristaino

    $26

  • The Feeney Family - Kevin, Kelly, Finn & Margaret

    $10

  • Kenny McCowan

    $100

  • Kenneth McCowan

    $100

  • Judy, George, Amanda, & Andie Nowell

    $50

  • Haylei's friend, Abby and Mem

    $100

  • Krissy, Don, & Thomas

    $50

  • Wonder Woman

    $23

  • Krissy & Don

    $25

  • Jen Dodge

    $25

  • The Pinto Family

    $50

  • Lisa & John Parisi

    $50

  • Verizon Matching Gift Program- Martine McDermott

    $50

  • Jack Fabello

    $25

  • Paula Fabello

    $25

  • Don & Thomas

    $150

  • Rebecca malatesta

    $25

  • Siobhan curran

    $25

  • Judith Jacoby

    $25

  • Ace and Alan Foulds

    $25

  • Linda & Tony Antetomaso

    $20

  • Greg Carson

    $20

  • Rick Collette

    $50

  • Cindy Chaput

    $40

  • Sue Quimby

    $20

  • Rene Davis

    $25

  • Gail Severt

    $25

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126% Raised of $5,000 Goal

Boston Marathon News on Twitter John Hancock on Facebook Go to the 2013 Boston Marathon Event Page

The Team: $128,619 TOTAL RAISED SO FAR

Fundraiser Title

Jenn Seney

Amount Raised

$11,607

 

46% Raised of $25,000 Goal

Fundraiser Title

Erica Robertson

Amount Raised

$11,148

 

223% Raised of $5,000 Goal

Fundraiser Title

Maren & Ryan Layton

Amount Raised

$10,986

 

110% Raised of $10,000 Goal

Fundraiser Title

Daniel Warner

Amount Raised

$9,931

Fundraiser Title

Geoff Gillard

Amount Raised

$9,785

 

196% Raised of $5,000 Goal

Fundraiser Title

Zenaida Jimenez

Amount Raised

$9,570

Fundraiser Title

KAREN OBRIEN

Amount Raised

$8,476

 

170% Raised of $5,000 Goal

Fundraiser Title

Lee Ann Coburn

Amount Raised

$7,731

 

155% Raised of $5,000 Goal

Donor Comments

Gail Severt

Gail Severt

DONATION: $25

2 years ago

Rene Davis

Rene Davis

DONATION: $25

In honor of my daughter, Kimberly. Go Krissy! All our love from Alabama! ♥ 5 years ago

Sue Quimby

Sue Quimby

DONATION: $20

Way to go Krissy! 5 years ago

Cindy Chaput

Cindy Chaput

DONATION: $40

5 years ago

Rick Collette

Rick Collette

DONATION: $50

5 years ago

Greg Carson

Greg Carson

DONATION: $20

Krissy, I'm donating this for Greg. He passed at $20 to each of us (you, Maureen and myself) when I saw him at the Good Times run in Lowell last night. - Mike 5 years ago

Linda & Tony Antetomaso

Linda & Tony Antetomaso

DONATION: $20

5 years ago

Ace and Alan Foulds

Ace and Alan Foulds

DONATION: $25

5 years ago

Judith Jacoby

Judith Jacoby

DONATION: $25

5 years ago

Siobhan curran

Siobhan curran

DONATION: $25

5 years ago