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Peter Tegroen's Fundraiser:

Team Rett Boston Marathon 2013

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Peter Tegroen

THE STORY:

RETT SYNDROME ASSN OF MASSACHUSETTS wrote -

 

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

Team Rett 2013 will be raising funds for Dr.Yun Li's research project at The Whitehead Institute, MIT called Modeling Rett syndrome using TALEN technology in human pluripotent stem cells.

Dr. Li will establish new models of Rett syndrome using genetically engineered human pluripotent stem cells. These cells will serve as an unlimited source of disease-specific human materials. These cells will be used to study the molecular, cellular, biochemical and electrophysiological aspects of Rett cells and how they react to existing drugs at a very fast pace. Rather than using mouse models which is an arduous process, hundreds of drugs can be tested with these stem cells to see which ones have positive effects. As a result, therapeutic strategies to prevent, delay and reverse Rett progression may be developed much more quickly, giving parents tremendous hope for a better future for their daughters.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

$2,695

MONEY RAISED
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  • Kate & Meg Curtis

    $25

  • Matt and June Hall

    $100

  • Mike & Jenny Kinsey

    $250

  • Frans and Lindsay te Groen

    $250

  • David and Lori Lush

    $100

  • Justin Bock

    $50

  • Janice Pescatore

    $50

  • Kenneth Hoffman

    $50

  • Nancy & James Connolly

    $30

  • Richard Harris

    $5

  • Peter Sullivan

    $100

  • Victor & Joan Kyslinger

    $40

  • Kathleen Baron

    $20

  • Jason & Amy Ehrlich

    $25

  • Gloria Ghoneim

    $50

  • Sanford & Annette Smith

    $50

  • Elena & L Douglas Earnhardt

    $50

  • Richard & Loretta Burnett

    $50

  • Joseph & Theresa Haggerty

    $10

  • Sona & Robert Doran

    $25

  • Sharon & Jim Otto

    $50

  • Diane Digiulio & Patrick Brophy

    $100

  • Richard & Dorothy Smith

    $100

  • Duke Power Matching

    $100

  • Faye & Rodney Green

    $50

  • Bernard & Constance Yarosik

    $50

  • Eco Marble & Granite

    $200

  • John & Rachel Cunningham

    $10

  • D L Hurst Homes

    $150

  • Chuck & Rosie Walsh

    $25

  • Jennifer, Sydney, and Summer

    $10

  • Anonymous

    $50

  • Anonymous

    $10

  • Lee Pittman

    $25

  • Mary,Tim and Victoria Groves

    $100

  • Virginia Trainor

    $50

  • Ross Williams (friend of Mary and Tim Groves )

    $40

  • Wendy Infantino

    $50

  • Mike & Judy Walsh

    $20

  • George & Carolyn Shoben

    $25

  • Robert & Lisa Koppenhofer

    $25

  • Fred Hicks

    $25

  • Paula Anderson

    $100

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Boston Marathon News on Twitter John Hancock on Facebook Go to the 2013 Boston Marathon Event Page

The Team: $128,619 TOTAL RAISED SO FAR

Fundraiser Title

Jenn Seney

Amount Raised

$11,607

 

46% Raised of $25,000 Goal

Fundraiser Title

Erica Robertson

Amount Raised

$11,148

 

223% Raised of $5,000 Goal

Fundraiser Title

Maren & Ryan Layton

Amount Raised

$10,986

 

110% Raised of $10,000 Goal

Fundraiser Title

Daniel Warner

Amount Raised

$9,931

Fundraiser Title

Geoff Gillard

Amount Raised

$9,785

 

196% Raised of $5,000 Goal

Fundraiser Title

Zenaida Jimenez

Amount Raised

$9,570

Fundraiser Title

KAREN OBRIEN

Amount Raised

$8,476

 

170% Raised of $5,000 Goal

Fundraiser Title

Lee Ann Coburn

Amount Raised

$7,731

 

155% Raised of $5,000 Goal

Donor Comments

Paula Anderson

Paula Anderson

DONATION: $100

5 years ago

Fred Hicks

Fred Hicks

DONATION: $25

5 years ago

Robert & Lisa Koppenhofer

Robert & Lisa Koppenhofer

DONATION: $25

5 years ago

George & Carolyn Shoben

George & Carolyn Shoben

DONATION: $25

5 years ago

Mike & Judy Walsh

Mike & Judy Walsh

DONATION: $20

5 years ago

Wendy Infantino

Wendy Infantino

DONATION: $50

5 years ago

Ross Williams (friend of Mary and Tim Groves )

Ross Williams (friend of Mary and Tim Groves )

DONATION: $40

Have a great run! 5 years ago

Virginia Trainor

Virginia Trainor

DONATION: $50

To my sweet Emma - Peter I know you will do well. God Bless you! Virginia 5 years ago

Mary,Tim and Victoria Groves

Mary,Tim and Victoria Groves

DONATION: $100

5 years ago

Lee Pittman

Lee Pittman

DONATION: $25

5 years ago