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Alicia Halbert's Fundraiser:

TEAM RORY

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BENEFITING: AUTOIMMUNE ENCEPHALITIS ALLIANCE INC

EVENT: Florence Forth Road Race

EVENT DATE: Mar 07, 2015

Alicia Halbert

THE STORY:

All donations made to Team Rory's #Run4Rory are tax deductible and benefit the Autoimmune Encephalitis Alliance, a 501(c)(3) organization whose mission is to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care.

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Rory first experienced a loss of balance and motor coordination at 2.5 years old and for the next few years, she developed a series of seemingly unrelated symptoms that worried her parents and puzzled doctors.

Then, when she was 6 years old —at a time when other children her age were wrapping up first grade and looking forward to summer vacation— her symptoms intensified to crisis levels. For a period of six weeks, she exhibited decreased consciousness, lost the ability to walk, was unable to speak coherently, and stopped eating and sleeping. She experienced hemispatial neglect (which meant one side of her brain was not working correctly), autonomic dysfunction, hallucinations and finally — and perhaps thankfully — a complete loss of memory of this frightening time.

Local doctors were at a loss to explain Rory’s symptoms, so her parents began an exhaustive search for medical answers. Over the next two years, Rory missed nearly 10 months of school before being seen by a team of doctors at Duke Children’s Hospital, who diagnosed Rory with Autoimmune Encephalitis (AE). Because Duke is one of the few pediatric centers treating this disease the family travels from their home in Indiana to North Carolina on a monthly basis.


The past six years have been extremely difficult for the Halberts as they have struggled to identify this mystery disease and find appropriate medical care for their daughter. Now the family faces a long battle against AE. Please join Rory’s team. Lend support during her recovery and help us raise awareness for AE.

DONATE

To This Fundraiser

$4,680

MONEY RAISED
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  • Anonymous

    $25

  • John & Sherry Halbert

    $50

  • Kevin and Katie Poch

    $20

  • Lizz Hoover, Maine West HS

    $25

  • Rosanna Giricz

     

  • Thinking of you all! Joy

     

  • Kathleen O'Leary

    $100

  • Ann & Trenton Lipscomb

     

  • Phil Parker

    $25

  • Amy and Ryan Claus

     

  • Chip Grey, MW High School

    $20

  • Johnny O'Hara, MW High School

    $20

  • Scrooge Stromberg

    $10

  • JD

    $100

  • Raven Moore

    $50

  • Little Family

    $25

  • Anonymous

    $50

  • Anonymous

    $20

  • Mike & Nina

    $150

  • John Garceau

    $100

  • Kathy Carey

    $100

  • The Martin Family

    $75

  • B.O.

    $25

  • Christoffel Family

    $100

  • Pat O'Leary Family

    $200

  • Mel and Judy Goldstein

    $100

  • The Westhoff Family

     

  • The Cain Family

     

  • The Monacella Family

     

  • Brian Turner & Kim Lantz

    $100

  • Tanya and David Burden

     

  • Lane 6

    $500

  • Lane 7

    $50

  • R. Miles

     

  • Owens family

    $50

  • JD

    $100

  • The Kerker Family

     

  • Lynn Johnson

    $25

  • anne & frank lombaer

    $25

  • Enrique Conterno

    $250

  • Wes & Katherine Merkle

    $50

  • Tom and Amy Perrin

    $100

  • Clay and Val Turner

    $50

  • Phillip and Linda Bly

    $50

  • Cate and Dave Hmurovich

    $50

  • Mark Spratt

    $45

  • Susie Shuck

    $50

  • Weldon

    $50

  • Beth Brown

    $100

  • Zurcher Family

     

  • The Paulson Family

     

  • Sarah Scott

     

  • Bernie and Blair Garceau

     

  • Eileen Chin

    $50

  • Diane Seymour

    $50

  • Steve and Tina Sullivan

    $50

  • Herrero Family

    $20

  • Jon and Cathy Marschall

    $100

  • Tricia Miller

    $30

  • The Jarman's

    $100

  • Laura Haule

    $100

  • Hilary McCormick

    $25

  • Tom and Sue O'Leary

    $200

  • Kristen J

    $20

  • John & Konnie Schlechte

    $50

  • Karyn Anen

    $25

  • Diane Neer

    $25

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187% Raised of $2,500 Goal

Fundraise for this Campaign

The Team: $4,680 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Alicia Halbert

Amount Raised

$4,630

 

185% Raised of $2,500 Goal

Fundraiser Title

Cote Garceau

Amount Raised

$50

Fundraiser Title

Pat & Marti O'Leary

Amount Raised

$0

Donor Comments

Diane Neer

Diane Neer

DONATION: $25

From the Mom with a son named Rory who took your picture at the Florence Forth run 8 months ago

Karyn Anen

Karyn Anen

DONATION: $25

2 years ago

John & Konnie Schlechte

John & Konnie Schlechte

DONATION: $50

3 years ago

Kristen J

Kristen J

DONATION: $20

3 years ago

Tom and Sue O'Leary

Tom and Sue O'Leary

DONATION: $200

3 years ago

Hilary McCormick

Hilary McCormick

DONATION: $25

Good Luck Team Rory!!!!! 3 years ago

Laura Haule

Laura Haule

DONATION: $100

Stay strong - you are all courageous and steadfast. We're with you. 3 years ago

The Jarman's

The Jarman's

DONATION: $100

Go Team Rory! We love you! 3 years ago

Tricia Miller

Tricia Miller

DONATION: $30

3 years ago

Jon and Cathy Marschall

Jon and Cathy Marschall

DONATION: $100

Keeping you all in our thoughts and prayers! 3 years ago