BENEFITING: Sickle Cell Disease Association of America, Inc.
About Sickle Cell Disease Sickle Cell Disease (SCD) is the most common genetic disorder in the United States. Present at birth, SCD consists of a group of inherited red blood cell disorders. The affects of SCD can be devastating with symptoms consisting of sever pain, hand & foot syndrome, anemia, acute chest syndrome, vision loss, stroke and in many instances, death. Sickle cell trait or the carrier state for sickle cell anemia occurs in high frequency among people of African-American and/or Hispanic descent, but it can also occur in people of all ethnicity. Funds raised from the National Sickle Cell Walk with the Stars (#ShineForACure) are granted to local and national programs that support the Sickle Cell Disease Association of America, Inc.'s promise to save lives and end Sickle Cell Disease forever. Funds are allocated for research and treament, support services and programs. SCD Quick Facts *Approximately 3 million people in the United states and 300 million worldwide are carriers of SCD, meaning they have Sickle Cell Trait. *SCD affects an estimated 90,000 - 100,000 Americans. *1800 - 2000 infants are born with SCD each year in the United States, primarily African American and Hispanic. *Worldwide, over 300,000 infants are born with SCD. *People with the most severe form of SCD may have a 2 - 3 decade shorter life expectancy. *20 - 30% of children with SCD experience stroke, which commonly results in cognitive impairment. *Individuals living with SCD average 200,000 emergency department visists annually. *SCD patients experice 18,000 - 20,000 or more blood transfusions per year.