My nephew Owen Shuler was diagnosed with SMA (Spinal Muscular Atrophy) when he was 8 weeks old. The life expectancy for children with SMA is 2 years old, Owen lost his fight at 5 months of age. Together with the Strong Family in Santa Barbara, California (their daughter Gwendolyn is currently fighting this disease) I am fighting to raise awareness and funds to help find a cure for this terrible disease!