Saij & Lucas are summer camp buddies, and share the same mutation of Duchenne. Lucas was diagnosed one year after Saij, in September 2009, so we are teaming up with this wonderful family and charity to help fund powerful research towards a cure for our boys.
In 2008, Saij was diagnosed with Duchenne Muscular Dystrophy (DMD). DMD is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year). DMD is a progressive muscle disorder for which there is currently no treatment or cure. Because the Duchenne gene is found on the X chromosome, it primarily affects boys; however, it occurs across all races and cultures. Duchenne results in loss of strength and muscle weakness, which leads to serious medical problems — particularly issues relating to the heart and lungs. Young men with Duchenne typically stop walking in their teens and slowly lose muscle function in every part of their bodies, including the heart.
Team Saij – Simply the Best is a registered 501(c)(3) charitable organization dedicated to funding research that advances a cure for this deadly condition. Its origin was inspired by the love of a little boy and the decision of four family members to run the NYC marathon in 2010. The research currently being funded will benefit thousands of boys around the world with this condition.
Team Saij – Simply The Best will be hosting their 1st Annual 5K Run/Walk in Gaithersburg, MD on May 16, 2015. The event will raise awareness and fund research for a cure for Duchenne Muscular Dystrophy (DMD).
FEEL FREE TO DONATE HERE AND VISIT TEAMSAIJ.ORG! ALSO, LIKE US ON FACEBOOK AT DASH4DUCHENNE AND TWEET US @Dash4Duchenne or @TEAMSAIJ!