Some of you may know that I have a wonderful little grandson named Lucas who has muscular dystrophy, and that every year at about this time I hit people up for a donation to support research on the disease. This year his mother has teamed up with another young boy named Saij with the same disease. He and Lucas are buddies from summer camp, and they both share the same mutation of Duchenne Muscular Dystrophy.
Duchenne is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. That sounds pretty small, but it works out to about 20,000 new cases each year. DMD is a progressive muscle disorder for which there is currently no treatment or cure. Because the Duchenne gene is found on the X chromosome, it primarily affects boys; however, it occurs across all races and cultures.
It results in loss of strength and muscle weakness, which leads to serious medical problems — particularly issues relating to the heart and lungs. Young men with Duchenne typically stop walking in their teens and slowly lose muscle function in every part of their bodies, including muscles in the heart.
“Team Saij – Simply the Best” is a registered 501(c)(3) charitable organization dedicated to funding research that advances a cure for this deadly condition. The research currently being funded will benefit thousands of boys around the world with this condition.
The team will be hosting their 1st Annual 5K Run/Walk in Boyds, MD on May 16, 2015. The event will raise awareness and fund research for a cure for Duchenne Muscular Dystrophy (DMD). I'll be there this year and walk with them, and I'll make a special effort to say nice things about you to the team if you donate to the cause.
Feel free to click the "Donate" button on this page and then also visit www.teamsaij.org for more information.
Also, they have a Facebook page (doesn’t everybody?) at dash4duchenne, so go there and click the “like” button. I'll see it and be impressed.
Thanks a lot and I hope to hear from you,
"Grampa Stan" Duncan