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EVA FINI's Fundraiser:

TEAM STRENGTH, HOPE, COURAGE

EVA's Photo

BENEFITING: Rett Syndrome Research Trust

EVENT: TEAM EVA

EVENT DATE: Oct 20, 2013

EVA FINI

THE STORY:

Dr. Gerry Galarneau, Albert Fini, and Aimee Fini are Running for a cure for Rett Syndrome, as TEAM HOPE, COURAGE, AND STRENGTH. Please help in raising much needed funds for Rett Syndrome Research. Eva and all the girls suffering from Rett Syndrome thank you.

Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, it usually strikes by 18 months of age, often just after a child has learned to walk and talk. As the cascade of Rett symptoms descend on her, she loses acquired skills, normal movement and speech, and begins the long regression that may leave her in a wheelchair, unable to communicate or use her hands. Extreme anxiety, Parkinson-like tremors, and orthopedic problems are common. Many children have intractable seizures. Some must be fed through tubes. Breathing, cardiac, circulatory and digestive functions are impaired. Many children live to adulthood, requiring total, 24-hour-a-day care.

Eva is our inspiration, despite her incredible challenges, Eva is amazing and touches everyone’s lives that she comes in contact with.   We are very proud of her accomplishments.  With her own determination, a lot of love from all who know her, all her hard work every day.  She is able to make choices with eye pointing, and uses a special switch to communicate basic needs.   She cannot use words, but she speaks volumes with her engaging eyes and bright smile.

 

$949

MONEY RAISED
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  • Pete Rushford

    $100

  • Karchners

    $50

  • Jim DeStefano

    $100

  • Mary Israelski and Ellen Barrett

    $52

  • Big Pete

    $60

  • Sean & Cara Hoffman

    $50

  • Kevin and Cindy Ilardi

    $100

  • Maura & Walter Mandel

    $35

  • Justin & Tavi Bockman

    $52

  • Mistretta Family

    $200

  • Hernandez fam

    $50

  • Diorio

    $50

  • Riley, Oliver and Massimo

    $50

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47% Raised of $2,000 Goal

The Team: $949 TOTAL RAISED SO FAR

Donor Comments

Riley, Oliver and Massimo

Riley, Oliver and Massimo

DONATION: $50

4 years ago

Diorio

Diorio

DONATION: $50

4 years ago

Hernandez fam

Hernandez fam

DONATION: $50

Stay strong, keep the faith! 4 years ago

Mistretta Family

Mistretta Family

DONATION: $200

4 years ago

Justin & Tavi Bockman

Justin & Tavi Bockman

DONATION: $52

4 years ago

Maura & Walter Mandel

Maura & Walter Mandel

DONATION: $35

4 years ago

Kevin and Cindy Ilardi

Kevin and Cindy Ilardi

DONATION: $100

4 years ago

Sean & Cara Hoffman

Sean & Cara Hoffman

DONATION: $50

4 years ago

Big Pete

Big Pete

DONATION: $60

4 years ago

Mary Israelski and Ellen Barrett

Mary Israelski and Ellen Barrett

DONATION: $52

It all about team Eva! Good luck. from Mary and Ellen 4 years ago