Dr. Gerry Galarneau, Albert Fini, and Aimee Fini are Running for a cure for Rett Syndrome, as TEAM HOPE, COURAGE, AND STRENGTH. Please help in raising much needed funds for Rett Syndrome Research. Eva and all the girls suffering from Rett Syndrome thank you.
Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, it usually strikes by 18 months of age, often just after a child has learned to walk and talk. As the cascade of Rett symptoms descend on her, she loses acquired skills, normal movement and speech, and begins the long regression that may leave her in a wheelchair, unable to communicate or use her hands. Extreme anxiety, Parkinson-like tremors, and orthopedic problems are common. Many children have intractable seizures. Some must be fed through tubes. Breathing, cardiac, circulatory and digestive functions are impaired. Many children live to adulthood, requiring total, 24-hour-a-day care.
Eva is our inspiration, despite her incredible challenges, Eva is amazing and touches everyone’s lives that she comes in contact with. We are very proud of her accomplishments. With her own determination, a lot of love from all who know her, all her hard work every day. She is able to make choices with eye pointing, and uses a special switch to communicate basic needs. She cannot use words, but she speaks volumes with her engaging eyes and bright smile.