BENEFITING: Tourette Association of America
ORGANIZER: Tourette Association of America
EVENT DATE: Nov 01, 2015
Kristin, Lora and Kathleen are running the New York City Marathon to raise money to help find a cure for Tourette Syndrome. One night at dinner among friends, we realized that we had similar goals in mind for the year. To run a marathon, do good for ourselves and others. Chief among the reasons to run, was to raise funds for a cause near and dear to Kristin's heart. Her son Ryan.
Here is Ryan's Story told from Kristin's point-of-view: After years of searching for answers to Ryan's behaviors, countless doctor appointments and medications, Ryan was diagnosed with Tourette Syndrome (TS) in December 2011. The initial diagnosis was devastating, but with time, we learned about TS, understood Ryan better and connected with other families managing the disorder. For the first time, we knew we were not alone. Thanks to the resources available through the Tourette Syndrome Association (TSA), we have been fortunate to find resources to help Ryan, such as therapy techniques, medication options, networking with other families, and most importantly, education. We have used this knowledge to advocate for Ryan in every aspect of his life, especially school. Three years later, Ryan is thriving. The tics which once took over his entire body are much more subdued and barely recognizable. Most importantly, Ryan is happy. His condition does not have any hold over him and he has a bright future! Ryan was very fortunate to be in a school environment that was accepting of his differences. Many kids with TS deal with bullying on top of the physical effects. Education is key to stopping this cycle. Through the support of TSA, and our Wisconsin chapter, we are working toward reaching out to schools and providing the education they need to understand that kids with TS are just like any other. Thank you for your support!