I run because I can. I never take that for granted. I run because it makes me feel healthy. I sometimes run for the challenge of it (such as tackling a marathon). Such challenge however is NOTHING like battling a terrible disease like ALS (a.k.a. "Lou Gehrig's Disease").
As the video link above mentions, I'm running this year’s Boston Marathon for the UMass ALS Champion Fund in honor of my step father Jack Brandley
who continues to battle ALS, and others that have suffered through this terrible disease.
ALS has impacted Jack's life in many ways, but it certainly has not broken Jack's eternal optimism, his huge heart, and his desire to see a world without ALS. He battles each day, relentlessly going through rehab and praying that some day a cure will be found.
Each year, it is estimated that 5,000 people in the United States are newly diagnosed with ALS, a progressive, neurodegenerative disorder affecting the motor neurons in the central nervous system. Please consider joining Jack and me in the fight against ALS through support of the UMass ALS Champion Fund.
UMASS MEMORIAL FOUNDATION INC wrote -
The UMass ALS Champion Fund:
In recognition of the critical need for new treatments for ALS, amyotrophic lateral sclerosis or Lou Gehrig’s Disease, the ALS Champion Fund is a movement to drive awareness and funding for the ALS breakthroughs happening at UMass Medical School (UMMS) and in the laboratory of Robert H. Brown, Jr., DPhil, MD one of the world’s leading and most promising ALS researchers.
The Champion Fund aims to help Dr. Brown and his colleagues pursue ALS research leads and breakthroughs right now that might otherwise take years to attract funding from traditional sources. As a result, this Fund will make researchers at UMMS better prepared to “seize the moment” when highly promising ALS discoveries are made.
UMMS and Dr. Brown are being joined in this effort by former Governor of Massachusetts and Ambassador to Canada, A. Paul Cellucci. Governor Cellucci announced in January 2011 that he has been diagnosed with ALS and is being treated at UMMS by Dr. Brown. News of Cellucci’s diagnosis sparked an outpouring of support from friends and colleagues across the Commonwealth and the country, including fellow former governors and other elected officials. Governor Cellucci has chosen to use his story as a catalyst to support ALS research at Massachusetts’ public Medical School.
“I am proud to continue my career in public service by leading the UMass ALS Champion Fund,” said Cellucci. “A champion helps to deliver great victories, and Dr. Brown is a true champion of ALS research. But, victories are a team effort. Dr. Brown and his colleagues at UMass Medical School need our support.”
Dr. Brown is widely recognized as a pioneer in neurodegenerative disease research and for 30 years has dedicated his career to unlocking the secrets of ALS, a degenerative disorder that causes progressive muscle weakness, leading to paralysis and eventually death. There is currently no treatment to stop or reverse ALS. Brown has been a leading visionary for ALS treatment and part of nearly every fundamental ALS breakthrough to-date, including the identification of mutations in a gene that is responsible for the rare, familial form of the disease. Brown’s work has opened a window into ALS that has drastically changed the research landscape and provided patients and loved ones touched by ALS with something very rare: hope.
The Champion Fund aims to extend and supplement the already great fundraising initiatives benefiting UMMS. Dr. Brown and team has been fortunate to receive support from a diversity of groups, including the Massachusetts-based Angel Fund and national partner CVS Pharmacy, both of which have been raising money for UMMS and acting as champions in the fight against ALS for more than 10 years. The Champion Fund will complement and extend those funding sources to augment the overall effort.
Now is the time. There is hope. But, victories are a team effort. Join us – become a champion and help fight back against ALS.
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