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Susan Marshall's Fundraiser:

Team ALS Champion Fund 2013

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Susan Marshall via Crowdrise
May 09, 2013

Thanks to all my recent contributors. I'm just $690 short of my goal! If you haven't given already, please do so by my deadline, May 31st.  See more
Susan Marshall

THE STORY:

Twenty years ago, I lost my father, Vance Norton, Jr., to complications due to ALS, amyotrophic lateral sclerosis or Lou Gehrig’s Disease. To honor his memory, I am running the 2013 Boston Marathon to raise money for the UMass ALS Champion Fund, which drives awareness and funding for the ALS breakthroughs happening at UMass Medical School.

I look forward to getting to the starting line, but I need your help to raise the $6,000 I have pledged to this great cause.

In technical terms, ALS is "is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed." (source: alsa.org)

In my own terms, ALS is heart-breaking disease where you witness your loved one slowly lose control of their body. At first, I watched my father desperately try to maintain control of his legs by using a walker, and then he had no choice but to move to a wheelchair, and eventually wound up in a nursing home. 

While my father's mind could not tell his muscles to move, it never lost its ability to think and observe all that was going on around him. Imagine how hard it must be to put on a brave face while your body gives up on you. My father tried, but towards the end, it was obvious what a struggle he was going through not only physically, but mentally.

Twenty years later and there is still no cure for this terrible disease. My hope is to raise money to help find a cure to prevent this kind of pain and suffering not only for the victims, but for their loved ones as well.

Please contribute today and help me accomplish this goal.

A little about me: I am a technical writer/editor and a seasoned triathlete (I have a blog at www.tri-moms.com). I ran my first marathon last November and live in Hopkinton, MA, where they start the Boston Marathon. To be able to participate in the marathon instead of simply watching is a huge honor.

 

$6,000

MONEY RAISED
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  • Christopher Weigand

    $200

  • Anonymous

    $605

  • steve

    $50

  • Pam

    $40

  • The Habeski Family

    $50

  • The Feaster Family

     

  • Rita Polatin

    $50

  • Ted

    $50

  • Elizabeth (Fischer) Tarantino

    $25

  • Klara Norton

    $200

  • Steve Norton

    $100

  • Andy & Karen Stanhope

    $50

  • Maxine

    $40

  • Invensys Women in Nuclear (iWIN)

    $1,000

  • Sue

    $40

  • Jody (Sue Sottak's friend)

    $25

  • Steve Scagliotta

    $317

  • Elizabeth Flores

    $15

  • Andrea Foley

    $50

  • Amy

    $50

  • Invensys Matching Gifts (for Pam A./Chris W.)

    $360

  • Cohava Golden

    $18

  • Juli

    $50

  • Duncan Warden

    $50

  • Carole Matthews

    $25

  • Woodpile Studios, Inc.

    $100

  • Uncle Chub

    $100

  • Helen HOart

    $25

  • Thomas & Patty Perkins

    $25

  • Blueline Associates, Inc.

    $100

  • Julie and David Forte

    $100

  • Mike and Geraldine McConchie

    $100

  • Dianne Leonard

    $25

  • Dawn Smith Maloney

    $25

  • Jenny and Herman Marshall

    $100

  • Michael and Pamela Moynahan

    $25

  • Christine and Mark Henderson

    $100

  • The Law Offices of Todd D. Beauregard, PC

    $50

  • Invensys Matching Gifts for iWIN (Invensys Women in Nuclear)

    $1,500

  • Invensys Matching Gifts for Sue Sottak

    $60

  • The McCallum Family

    $50

  • Karen Lilley

    $35

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100% Raised of $6,000 Goal

Boston Marathon News on Twitter John Hancock on Facebook Go to the 2013 Boston Marathon Event Page

The Team: $43,565 TOTAL RAISED SO FAR

Fundraiser Title

Joseph Strauss

Amount Raised

$7,594

 

127% Raised of $6,000 Goal

Fundraiser Title

John Megan

Amount Raised

$7,196

 

120% Raised of $6,000 Goal

Fundraiser Title

Brendan Byrne

Amount Raised

$6,655

 

111% Raised of $6,000 Goal

Fundraiser Title

Russ Becker

Amount Raised

$6,050

 

101% Raised of $6,000 Goal

Fundraiser Title

Susan Marshall

Amount Raised

$6,000

 

100% Raised of $6,000 Goal

Fundraiser Title

Charles Desourdy

Amount Raised

$5,600

Fundraiser Title

Lauren Grenier

Amount Raised

$4,470

 

75% Raised of $6,000 Goal

Fundraiser Title

Denise Clifford

Amount Raised

$0

 

0% Raised of $3,000 Goal

Donor Comments

Karen Lilley

Karen Lilley

DONATION: $35

5 years ago

The McCallum Family

The McCallum Family

DONATION: $50

5 years ago

Invensys Matching Gifts for iWIN (Invensys Women in Nuclear)

Invensys Matching Gifts for iWIN (Invensys Women in Nuclear)

DONATION: $1,500

5 years ago

Invensys Matching Gifts for Sue Sottak

Invensys Matching Gifts for Sue Sottak

DONATION: $60

5 years ago

The Law Offices of Todd D. Beauregard, PC

The Law Offices of Todd D. Beauregard, PC

DONATION: $50

5 years ago

Christine and Mark Henderson

Christine and Mark Henderson

DONATION: $100

5 years ago

Michael and Pamela Moynahan

Michael and Pamela Moynahan

DONATION: $25

5 years ago

Jenny and Herman Marshall

Jenny and Herman Marshall

DONATION: $100

Too bad you couldn't run the marathon but maybe, it was a good thing in the end. 5 years ago

Dawn Smith Maloney

Dawn Smith Maloney

DONATION: $25

5 years ago

Dianne Leonard

Dianne Leonard

DONATION: $25

5 years ago