BENEFITING: Epilepsy Foundation of Metropolitan New York
EVENT DATE: Sep 21, 2014
~We have created a team to run in support of our daughter, Valentina. She is 2 ½ years old and was diagnosed with Epilepsy shortly after her 1st birthday. It was life changing, not only for her but for our entire family.
~Her first seizure happened on October of 2012. During the day while she was sitting in her high chair, she started crying. Her father picked her up to calm her down and she began seizing. (You learn just how long a minute is when you are watching someone you love have a seizure). That was the scariest day of our lives as her parents. She was rushed to the hospital where she had yet another seizure. The hospital ran multiple tests including: blood work, urine tests, x-rays, ct-scans, spinal tap, MRIs & EEGs. Fortunately, all of the tests came back normal. Naturally, we were relieved, however, we were still unsure about the seizures seeing as neither of our families had a history of them in the past. After her third seizure they put her on medication which she takes twice a day.
~Ten months after her first encounter with seizure, we thought we were in the clear. However, in August of 2013, Valentina had five seizures and ended up in ICU. The doctors increased the dosage of her seizure medication. On Valentine’s Day 2014 after dinner, I asked Valentina if she wanted a cookie and she said yes. I sat her on the couch while she watched TV. I was in the kitchen not two minutes when I found my baby girl convulsing and her lips turning blue. Once more, she was admitted to the hospital where she had three more seizures. Her neurologist advised that for future occurrences because her seizures come in clusters, Valentina would need to be admitted every time so they can monitor her breathing.
~Valentina has been diagnosed with Complex-Partial Epilepsy with Secondary Generalization. Unfortunately, we, including her neurologist, still do not know why she has seizures. While her case is not severe, the fear of not knowing when a seizure could happen or whether or not she will outgrow this condition is scary. We are committed to educating ourselves on the why and how of her condition. We are happy to support Valentina and all those living with this neurological condition.
~Despite all of this, Valentina is an amazing little girl. She is smart, brave, sweet, funny happy and beautiful. She loves to entertain everyone with her dancing. Looking at her you would never know how much she has been through. She has never lost her beautiful smile!!!