BENEFITING: The Marfan Foundation
ORGANIZER: The Marfan Foundation
EVENT: Run Long Beach 2013
EVENT DATE: Oct 13, 2013
The Marfan Foundation wrote -
Team Victory is the National Marfan Foundation's Endurance Program. The Marfan Foundation is a nonprofit that fights for victory over Marfan sydrome and related disroders. Marfan syndrome is a life-threatening genetic disorder that most seriously affects the heart, blood vessels, and eyes so we do everything possible, including research, advocacy, and education, to make sure people can live longer fuller lives.