BENEFITING: National Fragile X Foundation
EVENT: Walk for FX
EVENT DATE: Apr 20, 2013
Amy Zeleznik wrote -
This Page is set up in honor of Abraham James Zeleznik. Abe was diagnosed with Fragile X Syndrome on September 19th, 2006. One of the first people the Zeleznik Family ever met was Holly Usrey Roos, and she has helped us navigate the this crazy, amazing life ever since!! We attended our first walk in April, 2007. It was amazing, overwhelming, reassuring, and left us feeling blessed- Blessed because we knew we were NOT ALONE! Blessed because we knew we would walk this path with others, warriors who would fight with us to raise funds and awareness!
This is our 10th Annual Walk for Fragile X Syndrome and 3rd Annual Fragile X 5K!
The walk was started 10 years ago in honor of Parker and Allison Roos, who were both born with Fragile X Syndrome (the leading cause of inherited intellectual disability and the leading genetic cause of Autism).
We will keep walking until we have a cure!