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Jill Yusko's Fundraiser:

Team Zoe Half Marathon for Rett Syndrome

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Jill's Photo
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Jill's Photo

BENEFITING: Rett Syndrome Research Trust

ORGANIZER: Rachel

EVENT DATE: Jun 26, 2011

Jill Yusko

THE STORY:

 

Dear Friends and Family,

This is my best friend Rachel. We met our 2nd year in college and have been by each others side ever since we left college. As 17 years have gone by she has definitely been there to support me through many happy and sad times in my life.  The worst day of my life was when my Dad passed away from cancer on Oct 22, 2000. Rachel was by my side every day just knowing just what to say. I was always thankful for her and always knew I would want to be there for her as she was for me if she ever needed it. 

On April 21st, 2008 she called me crying and I thought ok it's my turn to be the supportive best friend.   It was one day before her daughter Zoe's 3rd birthday. Zoe had some genetic testing done and the pediatrician called and diagnosed Zoe with Rett Syndrome. I was speechless. 

 Rett Syndrome is a childhood neurological disorder that affects 1 in every 10,000 girls. Most girls live in wheelchairs, have seizures, almost no purposeful use of their hands, are unable to speak, and have feeding tubes. As I read more I realized this was something she would live with every day and not really knowing how the disorder would progress for Zoe.

Zoe is now 6 years old and considered one of the 'lucky ones". She currently walks, and has some use of her hands. Her biggest challenge is that she is unable to speak. For someone who is 6 years old this is a tremendous handicap. Zoe cannot express what she is feeling, cannot tell anyone when she is in pain, what she wants to eat, drink, play with or watch on tv. Zoe is unable to do any self care and requires 24hr assistance.

Rachel and I decided to run the Fairfield Half Marathon in support of Zoe and to help promote awareness about Rett syndrome.  I will run thinking of the daily strength and courage my best friend Rachel endures as she awaits a cure for Zoe. 

So now for some good news.....Rett Syndrome has been reversed in a mouse model. Scientists are making amazing strides in their research and we truly believe Rett Syndrome will become the first reversible neurological disorder. Rett Syndrome is grossly underfunded. The charity I am running for is Rett Syndrome Research Trust - www.RSRT.org. 96% of every dollar donated goes directly towards researching a cure for Zoe and the thousands of other girls who suffer from Rett Syndrome each day.



Many thanks for your support and don’t forget to forward this to anyone who might want to support Team Zoe.

DONATE

To This Fundraiser

$1,325

MONEY RAISED
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  • Karen Kiyak

    $100

  • Angela Proske and Ted Burns

    $100

  • Allan and Cathy Proske

    $200

  • Aimee Wood

    $50

  • The Squillante Family

    $100

  • Anonymous

    $50

  • The Grenauer Family

    $100

  • Meredith Geller

    $50

  • Drew and Stephanne Proske

    $100

  • The Riker Family

    $25

  • Anonymous

    $25

  • Anonymous

    $50

  • Sheila Smith

    $50

  • Sejal Patel

    $100

  • Matt and Clay

    $100

  • Craig, Wendy and Cameron McRobb

    $100

  • Melissa, Chris & Alexandro

    $25

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Fundraise for this Campaign

The Team: $15,253 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Rachel Rothschild

Amount Raised

$6,627

Fundraiser Title

anne mitchell

Amount Raised

$3,620

Fundraiser Title

Hope Goldstein

Amount Raised

$2,821

Fundraiser Title

Jill Yusko

Amount Raised

$1,325

Fundraiser Title

Courtney Robins

Amount Raised

$580

Fundraiser Title

Laura Chang

Amount Raised

$100

Fundraiser Title

Marc Kitay

Amount Raised

$100

Fundraiser Title

susan saraf

Amount Raised

$50

Donor Comments

Melissa, Chris & Alexandro

Melissa, Chris & Alexandro

DONATION: $25

6 years ago

Craig, Wendy and Cameron McRobb

Craig, Wendy and Cameron McRobb

DONATION: $100

6 years ago

Matt and Clay

Matt and Clay

DONATION: $100

Good luck, Team Zoe!! 6 years ago

Sejal Patel

Sejal Patel

DONATION: $100

You are amazing! 6 years ago

Sheila Smith

Sheila Smith

DONATION: $50

I think it is wonderful that you are working hard to raise awareness of this horrible disease. 6 years ago

Anonymous

ANONYMOUS

DONATION: $50

6 years ago

Anonymous

ANONYMOUS

DONATION: $25

6 years ago

The Riker Family

The Riker Family

DONATION: $25

6 years ago

Drew and Stephanne Proske

Drew and Stephanne Proske

DONATION: $100

Jill, I am left humbled and speechless. I, selfishly thank God that I was blessed with three very healthy and happy daughters. My prayers to Zoe, her family and for finding a cure. 6 years ago

Meredith Geller

Meredith Geller

DONATION: $50

6 years ago