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Kerryanne Terry's Fundraiser:

Team Zoe Half Marathon for Rett Syndrome

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Kerryanne's Photo

BENEFITING: Rett Syndrome Research Trust

ORGANIZER: Rachel

EVENT DATE: Jun 26, 2011

Kerryanne Terry

THE STORY:

Rachel Rothschild wrote -

Dear Friends and Family,



On April 22, 2005 our amazing, beautiful, precocious Zoe was born. On April 22, 2008, on her 3rd birthday, our greatest fear was realized. A blood test confirmed that our little Zoe had Rett Syndrome. That day was one of the worst days of our lives. For the past 3 years a cure for Rett Syndrome is the first thing we think about when we wake up in the morning and the last before we go to sleep.



Rett Syndrome is a childhood neurological disorder that affects 1 in every 10,000 girls. Most girls live in wheelchairs, have seizures, almost no purposeful use of their hands, are unable to speak, and have feeding tubes. They live their lives bound and gagged. It is the painful, turn your head, too hard to look at truth.



Zoe is considered one of the 'lucky ones". She currently walks, and has some use of her hands. Her biggest challenge is that she is unable to speak. For someone who is 6 years old this is a tremendous handicap. Zoe cannot express what she is feeling, cannot tell us when she is in pain, what she wants to eat, drink, play with or watch on tv. It pains us to imagine how isolated she must feel. Zoe is unable to do any self care and requires 24hr assistance.



As her mom I am constantly amazed at Zoe's strength and perseverance, I know that my goal of running a 1/2 marathon pales in comparison to Zoe's daily life challenges.  Some of the best friends anyone could ask for will be running for Team Zoe on June 26th and Zoe will be at the finish cheering them on!!!



So now for some good news.....Rett Syndrome has been reversed in a mouse model. Scientists are making amazing strides in their research and we truly believe Rett Syndrome will become the first reversible neurological disorder. Rett Syndrome is grossly underfunded. The charity I am running for is Rett Syndrome Research Trust - www.RSRT.org. 96% of every dollar donated goes directly towards researching a cure for my Zoe and the thousands of other girls who suffer from Rett Syndrome each day.



Many thanks for your support and don’t forget to forward this to anyone who might want to support Team Zoe.

The Team: $15,253 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Rachel Rothschild

Amount Raised

$6,627

Fundraiser Title

anne mitchell

Amount Raised

$3,620

Fundraiser Title

Hope Goldstein

Amount Raised

$2,821

Fundraiser Title

Jill Yusko

Amount Raised

$1,325

Fundraiser Title

Courtney Robins

Amount Raised

$580

Fundraiser Title

Laura Chang

Amount Raised

$100

Fundraiser Title

Marc Kitay

Amount Raised

$100

Fundraiser Title

susan saraf

Amount Raised

$50

Donor Comments

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