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Robin Huiras' Fundraiser:

Teeing Off Against DC: Second Annual Linus and Leonard Huiras Memorial Golf Tournament

Robin's Photo
Robin's Photo
Robin's Photo
Robin's Photo
Robin's Photo
Robin's Photo

BENEFITING: DYSKERATOSIS CONGENITA OUTREACH INC

EVENT DATE: Jun 16, 2017

Robin Huiras

THE STORY:

Teeing Off Against DC: The Second Annual Linus and Leonard Memorial Golf Tournament, which will take place August 19, honors identical twin brothers who died as a result of having a rare, genetic condition known as Dyskeratosis Congenita. Born and raised near Sleepy Eye, Minn., Linus and Leonard Huiras and their families were profoundly impacted by the disease. The illness caused severe problems in the men, including aplastic anemia and degenerative hips, the men maintained their ability to golf despite their symptoms. The event will raise money that benefits families in the DCO community.

$200

MONEY RAISED
  • Bruce Friedman

     

  • Darlene Berberich Hoffmann

    $50

  • Dominic Lai

    $50

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4% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $200 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Dominic Lai

Dominic Lai

DONATION: $50

3 months ago

Darlene Berberich Hoffmann

Darlene Berberich Hoffmann

DONATION: $50

My 1st cousins. Will never forget them 3 months ago

Bruce Friedman

Bruce Friedman

In memory of Josh Friedman - Many thanks to the Huiras Family! 3 months ago