BENEFITING: Osteogenesis Imperfecta Foundation, Inc.
EVENT DATE: Oct 14, 2017
Alle Shea was born with type II Osteogenesis Imperfecta (OI). OI is a rare genetic disorder bone disease characterized by bones that break easily, often from little or no apparent cause. This disease does not run in our family, it was just spontaneous gene mutation. Rolling over in bed or sneezing can cause a fracture. At birth, Alle Shea had broken legs, ribs, wrist, arm and a fractured skull. To honor Alle Shea’s brave fight we created the Alle Shea Project; with help from the OI Foundation, we host various fundraisers to raise funds for grants and research to help children/adults with OI. We also send care packages all over the world to children with OI. So far, we have sent out 143 care packages to 38 state and 10 countries. We work hard to raise awareness of OI in Alle Shea’s name and to keep her fight alive. Please help us honor our brave Alle Shea’s battle by supporting our cause. For more info about OI, please visit the OI Foundation’s website at www.oif.org For more info about us, please visit www.allesheaproject.org