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Amyotrophic Lateral Sclerosis Association's Fundraiser:

The ALS Association Orange County Chapter

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 On March 17th The ALS Association Orange County Chapter will be  participating in The Los Angeles Marathon, in an effort to raise  awarness and funds for ALS research.
For the past 19 years we have  selected a person diagnosised with ALS to be pushed the entire 26.2  miles, showing the world that ALS will not stop us from living and  achieving the seemingly impossible.
This year's marathoner is Eryn  Blythe. Eryn is 39 years old, and when she was 6 months pregnant with  her second child, she began to notice slight weakness in her left hand.  She first thought it was something benign and pregnancy related.  Luckily, her doctors recognized some of the symptoms, and began their  diagnosis. In March 2014, one month prior to her baby being born, she  was asked to come in to see her OB the following day. While waiting for  the doctor, all of the lights in the building went out except for the  one spotlight in her exam room. Sitting there in the almost dark, with  her husband at her side, in a cold hospital gown, she was told that her  baby was healthy and strong, but that she would most likely not be there  to see either of her children start school, let alone finish it.
Every  90 minutes someone is diagnosed with amyotrophic lateral sclerosis  (ALS), a progressive neurodegenerative disorder. ALS, also known as Lou  Gehrig's disease, Charcot's disease, and motor neuron disease (MND),  attacks certain cells in the brain and spinal cord needed to keep our  muscles moving. The senses, including hearing, sight, smell, taste, and  touch, are not affected by ALS. Most people with ALS live 2-5 years  after their first signs of disease. About 10% of people with ALS survive  at least 10 years. This variable rate of disease progression makes  prognosis difficult to predict and therapies challenging to develop.
Currently,  there is only a single medicine for specifically treating ALS -  riluzole. The drug, marketed by Sanofi-Aventis under the name Rilutek,  extends survival by only about 2 to 3 months.
With your donation, you  will not only support Eryn in this once in a liftime activity, but  youll also be helping to create a world without ALS. Every penny raised  will go directly to research.  Together we can take steps towards a  cure.  




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