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Julie Buckner's Fundraiser:

The Buckner Family

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Julie Buckner

THE STORY:

On August 5, 2017, we will be hosting the 8th annual Pinning Down a Cure for HLH Bowling and Silent Auction Event at Louisville Lanes in Shakopee, MN. This event is held in memory of our daughter, Abigail, who, at 2 years old, lost her life to Hemophagocytic Lymphohistiocytosis (HLH).  HLH (Hemophagocytic lymphohistiocytosis) is a rare disorder of the immune system primarily affecting young infants and children.  HLH lays dormant until a virus triggers the immune system to ‘not turn off’ and your histiocytes (blood cells) go crazy and can attack your blood, skin, liver and central nervous system.  Abigail was a perfectly healthy 2 year old, until one weekend she became sick with flu like symptoms that worsened as the days went on.  We took her to her doctor and after several tests, we were immediately admitted to intensive care at Children’s Hospital in Minneapolis.  Abigail was fighting for her life and we had no idea why!  We received the diagnosis of HLH the next day and they started her on treatment. But the disease had already done too much damage.  Abigail lost her short, but devastating battle of HLH on Wednesday, February 25, 2009 (less than 24 hours after diagnosis).  HLH is so rare, there is little research into its cause and treatment. HLH is considered an "orphan disease," meaning it strikes too few people to generate government-supported research. All proceeds raised from Pinning Down a Cure for HLH are donated to research and education for HLH and other Histio related diseases.  The Abigail Buckner Foundation (EIN#-45-4506722) is one of few non‐profit organizations dedicated to providing support and education to patients and families dealing with histiocytic disorders in the United States. Our Foundation helps fund numerous research grants in hopes of finding better treatment options and a cure for this rare blood disease.

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To This Fundraiser

$1,755

MONEY RAISED
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  • Anonymous

     

  • Russ Testa

     

  • Shirley & Ed Berling

    $1,000

  • Olivia Grabianowski

    $25

  • Ann Blegen

    $100

  • Mary Day

    $50

  • Anonymous

     

  • Elizabeth Anderson

    $100

  • Al and Cindy Mehlhorn

     

  • Jeanne Emerson

    $100

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70% Raised of $2,500 Goal

The Team: $1,755 TOTAL RAISED SO FAR

Donor Comments

Jeanne Emerson

Jeanne Emerson

DONATION: $100

Always in my thoughts 4 weeks ago

Al and Cindy Mehlhorn

Al and Cindy Mehlhorn

2 months ago

Elizabeth Anderson

Elizabeth Anderson

DONATION: $100

Sorry to miss Pinning Down Cure today. Our thoughts and prayers are with you. 2 months ago

Anonymous

ANONYMOUS

2 months ago

Mary Day

Mary Day

DONATION: $50

2 months ago

Ann Blegen

Ann Blegen

DONATION: $100

2 months ago

Olivia Grabianowski

Olivia Grabianowski

DONATION: $25

3 months ago

Shirley & Ed Berling

Shirley & Ed Berling

DONATION: $1,000

3 months ago

Russ Testa

Russ Testa

3 months ago

Anonymous

ANONYMOUS

3 months ago