BENEFITING: Erythromelalgia-Erythermalgia Association
EVENT DATE: Jul 24, 2016
Written by Mabel Mammone
Story from Aimee Frank: "About 4 years ago my sisters' passion for running came to a halt. She began suffering from excruciating pain and burning in her feet. Her feet would turn red, itchy and hot to the touch. Things that were easy for my sister became stressful and difficult. This started the next chapter of her life - 2 years in and out of doctors offices. Not only was my sister traveling the country to see specialists, she was forced to take medical leave from her teaching job, was on and off crutches and even bound to a wheel chair. In addition to the pain, the inability to find answers left her feeling hopeless.
My sister was finally admitted into the Mayo Clinic where she finally found answers. She was diagnosed with Erythromelalgia. Erythromelalgia or EM, "affects approximately 1.3 out of every 100,000 people in the US. EM typically affects the skin of the feet and/or hands, and causes visible redness, intense heat and burning pain. The pain and burning sensations can be extremely severe. People with EM often make major adjustments to their lifestyles to avoid flare-ups. Even in mild-to-moderate cases, normal functioning such as walking, standing, working, socializing, exercising, and sleeping may be impaired." Source: http://www.erythromelalgia.org/
After 2 painful years of uncertainty, she was finally given the right treatment and is back on her feet with more manageable pain. She is back at work and has a smiling 2-year-old son. The money will be donated to The Erythromelalgia Association to raise awareness for this rare and crippling disease and help to quickly diagnose those struggling through this painful experience as my sister did.