BENEFITING: Kawasaki Disease Foundation
ORGANIZER: Kawasaki Disease Foundation
EVENT DATE: Nov 01, 2016
Our son was diagnosed with Kawasaki Disease, a rare illness in young children (cause unknown & not contagious) that causes arterial inflammation throughout the body, on October 4th, 2016 at 21 months of age. It turns out that he met every sign for Kawasaki Disease, which is rare since most children only meet 2-3 of the symptoms. Symptoms of Kawasaki Disease include high fever that persists for five or more days, a dry bumpy rash, bloodshot eyes, swollen/bright red tongue/lips, swollen lymph nodes, swollen hands/feet and red palms/soles of the feet. He spent the next three days in the hospital receiving a treatment of high-dose aspirin and IVIG. He was constantly connected to an IV, and had to endure a catheter, a snot test, and a sedated echocardiogram (which we have now had multiple of). We were lucky and he recovered from the disease with no damage to his little heart. However, there are thousands of children out there that have been affected by this disease, developing aneurysms, heart attacks, and lifelong symptoms.
The problem with Kawasaki Disease is that it is very hard to diagnose. There are no tests to run for it and no known precautions that parents can take. Even after a child is diagnosed with KD, they must endure routine checkups with the cardiologist, multiple echocardiograms, more worry and stress when it comes time to play competitive sports, & even more focuson a healthy diet and lifestyle. Help us save the hearts of children all of the world by donating to the Kawasaki Disease Foundation!
The Butlers <3>
Kawasaki Disease Foundation wrote -
We are excited to launch our first "More Than Words" Challenge, an online fundraising and awareness campaign for Kawasaki Disease that will start on November 1st, 2016 and will end at midnight PST on January 26th, 2017(National Kawasaki Disease Awareness Day). Our goal is to raise $26,000 for KDF initiatives while raising KD awareness.
This challenge is a great opportunity to show the public why "More Than Words" are needed to advance KD research and awareness. As KD patients, parents, and researchers, we can agree that more than words are needed to increase funding for KD research in order to determine the cause of KD (what we all want to know, right?) and help researchers determine if KD is preventable.
Thanking you in advance for your support,
Your friends at the Kawasaki Disease Foundation