Mila is a hilarious little girl with a beautiful soul. Her mother, Julia, and I have been friends since we were in kindergarten together in Washington, D.C. As fate would have it, we both landed in Boulder, CO as adults and have loved being so close as we raise our kids. When my family first arrived in Boulder 4.5 years ago, Mila was my son's first friend. She was a full year younger but had no trouble keeping up with him. They shared so many good times at playgrounds, the creek, in the snow. Lots of laughter. Over the years, though, things started to change for Mila. Concerns arose about her development and her parents spent several frustrating years not getting answers from doctors and constantly worried about what was causing these changes in their previously boisterous, active and precocious little girl. Sadly, in December, Mila was diagnosed with Batten Disease. This is a rare and devastating neurodegenerative disease. As a parent, this is the kind of diagnosis that can just crush you completely. While I know Julia has hard days as Mila's mom, she is a force of nature and so deeply motivated by her love for Mila. She has done incredible work in just a few months to start a cutting edge clinical trial in gene therapy. This could drastically improve Mila's prognosis and help other kids with similar diagnoses, not to mention advance the treatment options for other kinds of rare diseases. Mila's community in Boulder is rallying together in so many ways. I've created this team for the Bolder Boulder alongside so many other lovely people who are doing the same in an effort to raise the money needed to start Mila's clinical trial. Julia has been working with scientists around the world and has a team lined up to do the work, but if she doesn't raise the funds by May the trial goes on hold. Please consider a donation to support me and my team and as we run for Mila, for health, for friendship, and for a chance at life.