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The Mito Angel

Organized by: marsha garrett

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Hi, My name is Marsha Ann Garrett I am 39 year old I am a single and proud mother of three children my oldest is 19 my middle child is 14 and my youngest child is 7. I am here to share my 14 year old sons story. My sons name is Kevin Jayde Garrett. My son has Mitochondrial Myopathy he was diagnosed with it from birth. For those who are unclear of what this disease is it is a very rare muscle disease that disables every muscle in your entire body making it difficult to function in daily life. I was told when my son was born he did not have long to live at first they said he could die before being a month old he survived that. Then times for his death changed several times no one is clear when my son will pass away because he is a fighter. My son has had over 19 surgeries in his life. Two of which were open heart surgeries. My son has his a surgery coming up because his lung have pushed on his Ribs. Now they have to break my sons ribs and replace them with plastic hard ribs to keep them from breaking and puncture is lungs. When Kevin was born he had to be put on full time oxygen to help him breath he could not eat food so they placed a feeding tube in his belly. He had the feeding tube until he was 12 years old and still struggles with gaining weight. He was removed of the oxygen at 6 years old only to be placed back on it again at 13. My son has been hospitalized over half of his life do to pneumonia. There was several cases in which I did not think I would be bringing my son home. I cry begging God to heal my son and let him live his life. My son has asked me why did it have to be him that was sick. To be honest I cry when he ask that because I do not have the answer he wants. I ask for your help to help me fight for my son


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marsha garrett

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