BENEFITING: Brigham and Women's Hospital
Thank you for visiting our "registry" and contributing to the O’Hare Family Cardiovascular Research Fund which supports crucial research for cardiomyopathy at Brigham and Women's hospital. Alyssa and I have a deep, personal connection to this research and are thrilled that you have decided to honor our marriage with a donation to help others with the Lamin gene share more moments with those they love.
Only a year after my brothers were born, my father, Kevin O'Hare, was diagnosed with Lamin cardiomyopathy. We later learned that many of his close relatives also possessed this heart-weakening gene. Dr. Lakdawala and his team at Brigham and Women's hospital were able to help him live 14 more amazing years. So many of our family's greatest moments fell within those years. First communions, graduations, little league, high school and college baseball games, dinners at the Steakhouse in Maine, and a trip to Disney World. He was even able to jump up and down and cry tears of joy when his beloved Red Sox won the World Series in '04 and again in '07. We could not be more thankful for what Dr. Lakdawala and his team have done and continue to do at Brigham and Women's hospital with their research into the Lamin gene. Your generosity means so much and we can't wait to share our wedding day with you.
Generously established at Brigham and Women’s Hospital (BWH) in 2013, the O’Hare Family Cardiovascular Research Fund provides critical support for research focused on deepening our understanding of cardiomyopathy—a condition that causes the cardiac muscles to become enlarged and weakened—and developing new therapies to improve patient outcomes. In particular, the O’Hare Fund supports current investigations focused on the influence of the Lamin gene—which encodes proteins that help stabilize and regulate the cellular nucleus of muscle cells—in cardiomyopathy. Under the leadership of Neal Lakdawala, MD—a cardiovascular medicine specialist and attending physician—work underway at BWH’s Heart and Vascular Genetics Program is yielding new insights into the clinical characteristics of Lamin cardiomyopathy, testing promising treatments, and helping bring best practices to clinical care. The time will eventually come when these conditions are easily prevented or halted in their early stages. The O’Hare Family Cardiovascular Research Fund has enabled our work to progress and given us encouragement as we continue to expand our understanding of heart disease prevention and treatment.