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Deborah Capen's Fundraiser:

The TMA 20 for 20 Anniversary Challenge

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Deborah Capen

THE STORY:

I became paralyzed from the waist down on December 30, 1996. My life ended as I knew it on that day, and a new life began.  Through my own therapies, I regained the ability to walk, with aids, at the end of one year.  17 years later, I still suffer with some of the deficits associated with any spinal cord injury (transverse myelitis is considered a non-traumatic spinal cord injury).  Through the early days of internet in 1997, I connected with Jim Lubin and Sandy Siegel, and volunteered my time and energy to the newly-formed nonprofit organization known as the Transverse Myelitis Association.

I am still donating my time and energy to the TMA, and we celebrate our 20th anniversary, which is a huge accomplishment for a small grassroot nonprofit.  We have grown from 187 members in the U.S. in 1997 to over 10,500 members in 80 countries worldwide.  I am so proud of my organization, and I hope that you will help me to help TMA continue to grow.

Transverse Myelitis Association wrote -

https://myelitis.org/donate/20-for-20-anniversary-campaign

Download the 20-Year Power of Giving campaign Flyer!

Message from TMA President, Sandy Siegel

My wife, Pauline, will recognize a very difficult anniversary in July 2014; she will have had her inflammatory attack from transverse myelitis 20 years ago.  The year 2014 also represents the 20th anniversary of The Transverse Myelitis Association. Pauline’s and the TMA’s anniversaries are inextricably bound.  I wrote about these very personal anniversaries in my editor’s column in this past winter’s newsletter. The goals and the programs of our Association have been accelerated and intensified over the past couple of years through the efforts of a growing and focused professional staff, a more engaged board and through the energies offered by a highly motivated and dedicated volunteer community.  From research, to the development of new specialists and new centers of excellence, to improved medical education and clinical care, to community education programs, to support networks to quality of life camps, the work of the TMA continues to expand, reaching larger and larger numbers of our membership both nationally and globally.

Our 20-year anniversary is focused on expanding our resources by expanding the participation of our members.  The numbers of our membership are just too small for anyone to ignore this effort.  Everyone needs to get involved.  Your willingness to engage your friends and families in this campaign will make all of the difference for us and for you.  These are the people who most intimately understand how having ADEM, TM or NMO has impacted your life and your family’s lives.  It is time for us to change the world and to heal the world for those people and their loved ones who suffer with these rare and devastating neuro-immune disorders.

Please invest in research and the future of the TMA by joining the campaign.

- Sandy Siegel, PhD

For more about the TMA – www.myelitis.org

DONATE

To This Fundraiser

$190

MONEY RAISED
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  • Deborah Capen

    $20

  • Mariellen High

     

  • Linda Miller

    $20

  • Ron Raulerson

    $20

  • Michael J. Capen

    $20

  • Anonymous

    $20

  • Margaret

    $50

  • John & Kathy K.

    $20

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38% Raised of $500 Goal

Fundraise for this Campaign

The Team: $85,316 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sanford Siegel

Amount Raised

$36,409

 

867% Raised of $4,200 Goal

Fundraiser Title

Linda Malecky

Amount Raised

$30,258

Fundraiser Title

Barbara Sattler

Amount Raised

$3,550

Fundraiser Title

Jim Lubin

Amount Raised

$2,395

 

570% Raised of $420 Goal

Fundraiser Title

Lynn Harrington-Giesler

Amount Raised

$1,015

 

242% Raised of $420 Goal

Fundraiser Title

Chris Williams

Amount Raised

$1,010

 

101% Raised of $1,000 Goal

Fundraiser Title

Lynn Nelson

Amount Raised

$1,000

 

100% Raised of $1,000 Goal

Fundraiser Title

julie ostroski

Amount Raised

$970

Donor Comments

John & Kathy K.

John & Kathy K.

DONATION: $20

3 years ago

Margaret

Margaret

DONATION: $50

3 years ago

Anonymous

ANONYMOUS

DONATION: $20

Debbie Capen 3 years ago

Michael J. Capen

Michael J. Capen

DONATION: $20

Deborah Capen 3 years ago

Ron Raulerson

Ron Raulerson

DONATION: $20

Debborah,, Thanks for all the work you have done for the ssociation. 3 years ago

Linda Miller

Linda Miller

DONATION: $20

3 years ago

Mariellen High

Mariellen High

Tribute to my sister, Debbie Capen and her tireless efforts toward raising awareness of the TM. 3 years ago

Deborah Capen

Deborah Capen

DONATION: $20

3 years ago