As some of you know, I was diagnosed with Transverse Myelitis after Abby was born. If our life wasn't crazy enough with a newborn, then one morning, I woke up paralyzed. The Transverse Myelitis Association website and newsletter were so important to my family as we had to learn about this rare disorder that has no cure and no one seems to know anything about.
Eight years later and you wouldn't know anything was wrong by looking at me, but I live with daily reminders. There are many who are less fortunate in their recovery and remain paralyzed, quads, on ventilators, left with debilitaing pain. For all those people, I request that you consider donating to the Transverse Myelitis Association 20-for-20 anniversary campaign. It would be so wonderful to see progress in the research for the treatment of TM, maybe even a cure for the spinal cord damage it leaves.
Thanks for taking a moment to read this note! If you have another moment, read the following note from the TMA president and founder:
Transverse Myelitis Association wrote -
Message from TMA President, Sandy Siegel
My wife, Pauline, will recognize a very difficult anniversary in July 2014; she will have had her inflammatory attack from transverse myelitis 20 years ago. The year 2014 also represents the 20th anniversary of The Transverse Myelitis Association. Pauline’s and the TMA’s anniversaries are inextricably bound. I wrote about these very personal anniversaries in my editor’s column in this past winter’s newsletter. The goals and the programs of our Association have been accelerated and intensified over the past couple of years through the efforts of a growing and focused professional staff, a more engaged board and through the energies offered by a highly motivated and dedicated volunteer community. From research, to the development of new specialists and new centers of excellence, to improved medical education and clinical care, to community education programs, to support networks to quality of life camps, the work of the TMA continues to expand, reaching larger and larger numbers of our membership both nationally and globally.
Our 20-year anniversary is focused on expanding our resources by expanding the participation of our members. The numbers of our membership are just too small for anyone to ignore this effort. Everyone needs to get involved. Your willingness to engage your friends and families in this campaign will make all of the difference for us and for you. These are the people who most intimately understand how having ADEM, TM or NMO has impacted your life and your family’s lives. It is time for us to change the world and to heal the world for those people and their loved ones who suffer with these rare and devastating neuro-immune disorders.
Please invest in research and the future of the TMA by joining the campaign.
- Sandy Siegel, PhD
For more about the TMA – www.myelitis.org