To all my friend & family who know me and know my story I hope that you can help with this fundraiser! For those of you who don’t know my story and what I deal with on a daily bases because of Transverse Myelitis here goes I was diagnosed 6 years ago in September. After 9 days in the hospital and 5 days in house rehab and months of Physical therapy. I still deal everyday with the incisive band around the middle section of my abdomen, knees and ankles; I have pins and needle in my feet 24-7, and severer pain where my lesion is in my spinal cord. I have issue with bladder and bowls and I fight depression, fatigue know on a daily bases. This is all due to a viral infection in my spinal cord which came on so suddenly that I was temporally paralyzed. I consider myself to be one of the like ones I was diagnosed early. Luckily I had doctors who were familiar with the condition, Some take month and years to diagnose, Which is why this is so important that we raise fund because it is a cause not like all the other due to the fact there so little known about these disorders (TM, ADEM and NMO), which is why we need your help with funds. So TMA can support and fund clinical and research grants and education and quality of life camp for children and young adults with rare neuroimmunologic disorders. I hope you can help and even the small donation would be great!
Transverse Myelitis Association wrote -
Message from TMA President, Sandy Siegel
My wife, Pauline, will recognize a very difficult anniversary in July 2014; she will have had her inflammatory attack from transverse myelitis 20 years ago. The year 2014 also represents the 20th anniversary of The Transverse Myelitis Association. Pauline’s and the TMA’s anniversaries are inextricably bound. I wrote about these very personal anniversaries in my editor’s column in this past winter’s newsletter. The goals and the programs of our Association have been accelerated and intensified over the past couple of years through the efforts of a growing and focused professional staff, a more engaged board and through the energies offered by a highly motivated and dedicated volunteer community. From research, to the development of new specialists and new centers of excellence, to improved medical education and clinical care, to community education programs, to support networks to quality of life camps, the work of the TMA continues to expand, reaching larger and larger numbers of our membership both nationally and globally.
Our 20-year anniversary is focused on expanding our resources by expanding the participation of our members. The numbers of our membership are just too small for anyone to ignore this effort. Everyone needs to get involved. Your willingness to engage your friends and families in this campaign will make all of the difference for us and for you. These are the people who most intimately understand how having ADEM, TM or NMO has impacted your life and your family’s lives. It is time for us to change the world and to heal the world for those people and their loved ones who suffer with these rare and devastating neuro-immune disorders.
Please invest in research and the future of the TMA by joining the campaign.
- Sandy Siegel, PhD
For more about the TMA – www.myelitis.org