Welcome to my fundraising website for the Transverse Myelitis Association. In 2011 I was diagnosed with Transverse Myelitis (TM), a demyelinating disorder of the spinal cord. My diagnosis was a game changer for me. I went from being the "energizer bunny" to someone who worried when the next attack of paralysis would happen. It was frightening for me and my husband.
I have been fortunate in that the paralysis I experienced was not permanent, though I live in fear that it may return. Other TM patients are not that fortunate; they live their life in a wheelchair. I think I run so many marathons because I am not certain what the future holds.
The TMA mission is to advocate for those of us with rare neuroimmunologic disorders. They promote awareness of TM and empower patients, families, clinicians and scientists through education programs and publications. I have learned much of what I understand about my condition through their resources. Additionally, TMA advances the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research.
I hope you will choose to make a donation to TMA because TM sucks!
I thank you for your generous show of support.
For more about the TMA – www.myelitis.org