BENEFITING: Osteogenesis Imperfecta Foundation, Inc.
EVENT DATE: Sep 27, 2014
Jean Aurio wrote -
Alle Shea was born with Type II Osteogenesis Imperfecta, which is a genetic disorder characterized by bones that break easily, often from little to no apparent cause. Alle lived a miraculous 5 weeks before losing her battle with this disease.
The Alle Shea Project and OI Foundation raise awareness, research and support families with OI.
We are raising money for the OI Foundation.
The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support. The OI Foundation began in 1970 when a small group of parents from around the nation met in Chicago to discuss OI and its problems. At that time, they banded together to stimulate public and professional interest, support families and encourage research. Today, many of the people who serve on the board of directors and oversee the Foundation's operation have OI themselves or are parents of children with OI.