BENEFITING: ALS Association Greater New York Chapter
ORGANIZER: ALS Association Greater New York Chapter
EVENT DATE: Nov 03, 2013
I am embarking once again on a new training adventure for a cause that is very close to my heart.
I’ve decided to join again Team ALS and run the 2013 NYC Marathon to raise funds for the ALS Association - New York Chapter.
As many of you may already know, my father, Daniel, was diagnosed with ALS in 2004 and passed away in 2005. I will be running this year’s NYC Marathon not only in honor of my father and his incredible inner strength, but also in honor of his remarkably strong caregivers: my mother, Cristina, my sister, Dominique, and my brother, Juan Carlos.
In addition, I will be running in gratitude of my family’s invaluable support circle, before, during, and after ALS: great friends, family, doctors, nurses, and the ALS Association and Key Biscayne community.
Please help me raise funds for the ALS Association!
Your invaluable contribution will support the ALS Association in its search for a cure and better treatment options for ALS patients and will empower the association to provide appropriate support to people with ALS and their families.
In return, I pledge to train vigorously. I will dedicate my time, my body, and my inner strength in celebration of this amazing cause.
I promised my dad I would run for him, so here I go again!
What is ALS?
When my father was diagnosed with ALS, we had no idea what this was, what it meant. I had never heard of this disease and never anticipated what came after the diagnosis.
Amyotrophic Lateral Sclerosis (ALS) is a motor neuron disease or neurodegenerative disease. Today, there is no real consensus on what the cause of ALS is, and the condition is not completely understood, but there is a lot of research and significant advances have taken place. However, investments in research for a cure and better treatment are imperative. We need to help!
ALS is a that usually attacks both upper and lower motor neurons and causes degeneration throughout the brain and spinal cord. My father first discovered that his foot (I believe his left one, if I remember correctly) was weak and not responding correctly. He had difficulty walking and started limping strangely.
Physicians have limited choices for treating ALS, there was really not much we were able to do for my dad sadly… but we kept him comfortable. There is no cure. However, investments in research have proven to be fruitful.
For more information, visit the ALS Association website: http://www.als-ny.org/index.php?page=als_facts