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The Champ Foundation

The Champ Foundation
CROWDRISE : Feb 16, 2016
Tax ID: 47-5555752
BASED: Durham, NC, United States

CHARITY WEBSITE: thechampfoundation.org

Mission Statement

The Champ Foundation supports research toward better treatment and a cure for Pearson Syndrome.

Pearson Syndrome (PS) is a multi-system disease caused by a deletion in mitochondrial DNA. The hallmark features are sideroblastic anemia and pancreatic insufficiency. PS is often fatal in infancy. In addition to the hematological and pancreatic symptoms, PS can impair the heart, kidneys, eyes, ears and brain. Survivors develop Kearns-Sayre Syndrome.

Since its discovery in 1979 by Howard Pearson, there have only been around 100 cases reported in the medical literature. PS is probably under-diagnosed, since few doctors are aware of the disease’s existence, much less its symptoms.

 

Tax ID: 47-5555752 • thechampfoundation.org

Fundraisers

#22for2

#22for2

Amount Raised:

$18,686

 

300% Raised of $6,222 Goal

Duke MBA Friends of William

Duke MBA Friends of William

Amount Raised:

$1,030

 

51% Raised of $2,017 Goal

Fall Benefit Concert

Fall Benefit Concert

Amount Raised:

$545

 

182% Raised of $300 Goal

Siesta Key Paddleboards Race for Champ

Siesta Key Paddleboards Race…

Amount Raised:

$985

 

25% Raised of $4,000 Goal

Chase for The Champ--Tar Heel 10 Miler

Chase for The Champ--Tar Hee…

Amount Raised:

$1,305

 

131% Raised of $1,000 Goal