BENEFITING: March of Dimes Foundation
EVENT DATE: Oct 30, 2014
We are honored to be serving as this year's Signature Chefs Auction Ambassdor Family. Our goal is to raise $5000 for the March of Dimes towards their $50,000 goal. Here is our story.
We were excited to meet our little boy in May of 2013. But at our 30 week appointment, we learned that Jaxon wasn’t growing as expected, and I was placed on bedrest. A C-section was scheduled as it was determined that Jaxon had stopped growing.
On April 11, 2013, Jaxon was born weighing 4 lbs, 3 ounces. Due to his early arrival and size, he was sent to the Neonatal Intensive Care Unit. I had been fortunate to receive a round of steroid shots to assist with lung development before Jaxon’s delivery, so he never needed oxygen support. We thought that we would be there for a week or two and leave with our perfect little boy.
But on Saturday, April 13, one of the nurses noticed that something was wrong with Jaxon’s eyes. They called a pediatric ophthalmologist in to do an exam, and they determined that he had bilateral corneal opacification. We had to wait and worry until Monday for an appointment with a cornea specialist. After a disappointing meeting that day, we requested to be transferred to the University of Iowa Children’s Hospital, and were in an ambulance 2 hours later.
Jaxon spent the next 13 days in the NICU, undergoing ultrasounds on his eyes, genetic testing, and eye exams. We were discharged without a name for his condition and an appointment for an exam under anesthesia. During the first year of his life, Jax has had a cornea transplant and rejection, developed glaucoma and a cataract, countless eye drops, and undergone many eye dilations and appointments.
Throughout all of the ups and downs of this journey, we have learned so much from Jaxon. Being partially sighted is just one small part of what he is– it’s not WHO he is. Jaxon is developing on track with his peers, and while we are not certain what his vision may be in the future, we take each day with him as it comes. Nothing has taught us to appreciate the simple things more than being told our son would be blind, and now watching him see. We’re proud to be representing the March of Dimes and sharing our story, for the funds that they are raising is supporting eye research that benefits kids just like Jax. Together, we are working towards a day when every baby is born healthy.