The J-Team: Fighting 4 Justin
Organized by: Maegan Eichinger
Maegan Eichinger via Crowdrise
April 29, 2015
Dear Friends, Family and Complete Strangers,
My name is Maegan Eichinger and my boyfriend, Justin Clontz has been diagnosed with cancer. Specifically, Atypical Teratoid Rhabdoid Tumors (AT/RT). These are highly malignant tumors of the central nervous system most commonly found in children less than 5 years of age. Although this is a childhood cancer, there have been isolated case reports of AT/RT in adults. Justin is 25 years-old and a mere 6 weeks ago he was a completely healthy adult.
However, in these past 6 weeks he has gone through Hell and back. His mom and I have been by his side from day one when he collapsed in the parking lot of the ER when I first took him to the hospital. We were there when he experienced a 5 minute seizure and became extremely confused, no longer able to recognize us. We followed an ambulance at midnight when he got transported to Wake Forest University Hospital. I lived out of a hospital for weeks while neurologists tried to figure out what was going on. We cried with him when they found the tumors along his spine. Paced back and forth for 5 hours as neurosurgeons performed the biopsy of one of the many tumors located on his spine and brain stem. And finally witnessed his sheer strength and determination as he learned to walk again because these tumors had completely immobilized him.
Needless to say, Justin Clontz is the kind of human being you want to fight for. Yet, what his family and I have gone through is nothing compared to the pain, anxiety, and fear for life that he has experienced. Whether you have known him for years, weeks, or even days, you understand how easy it is to fall in love with his beautiful personality. He radiates positivity and has selflessly supported me in every venture I have pursued. Now it’s time for me to support him.
The oncologists at Wake Forest have admitted that they have never seen an adult with AT/RT before. Therefore their prognosis is dismal, at best. His family and I refuse to accept this. As a result, we have done our own research and believe that Dana-Farber Cancer Institute in Boston, MA is the best possible place for him. We are already in contact with an amazing doctor and are praying that she can deliver us good news in the form of hope. As a result, trips back and forth to Boston may be on the table along with extensive medical bills.
Therefore, I deeply and sincerely appreciate any amount of help/support in the form of prayers, positive energy, or donations that you can provide to empower Justin and help make his fight a little bit less stressful. Justin is a warrior undergoing a long and hard battle, but I whole-heartedly believe he will be victorious.
I fully intend to donate any money over the requested amount to the American Cancer Society in the hopes that further research can be done for adults with AT/RT. I hope no one will ever have to experience the fear and anxiety of the unknown like Justin has. So little research has been done on his condition because it is so rare, I hope to change this! The fact that Justin is walking again is already a miracle. Let’s keep it going!
Thank you in advance for the the love and support.