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Jon Gould's Fundraiser:

The Marfan Foundation NYC Marathon 2016

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owner profile imageMission Accomplished!
November 08, 2016

With the support of many friends and family, we were able to donate over $3200 to the Marfan Foundation!! We are so grateful for everyone's generosity.  See more

BENEFITING: The Marfan Foundation

ORGANIZER: The Marfan Foundation

EVENT: 2016 TCS NEW YORK CITY MARATHON

EVENT DATE: Nov 06, 2016

Jon Gould

THE STORY:

The Marfan Syndrome is a genetic condition that affects connective tissue. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs. As many as 1 in 5000 people in the United States is estimated to have this condition, yet few people have heard of it.

In 2005, we discovered that our daughter Anna (now 14) has the Marfan syndrome. She has great doctors and is a tough, happy teenager who takes the frequent holter monitor tests, echocardiograms, and eye doctor appointments in stride. We recently completed a 2 year enrollment in a clinical trial sponsored by the National Institute of Health examining the impact of a specific kind of medication on the Marfan Syndrome (Aorta enlargement primarily). There are many questions about Marfan Syndrome that have yet to be answered, and exciting new treatments not yet explored. We want to help, and we would like to ask for your help as well.

The 2016 NYC Marathon represents our 3rd fundraising effort to support the National Marfan Foundation.  In 2009, Jon ran 4 marathons as a part of a fund raiser to support the NMF. Beth joined him at the 4th marathon in San Antonio and completed the half marathon as a part of this effort.  In 2013, Beth and Jon partnered with their friends Matt and Molly Wowk in running the Marine Corps marathon in support of the NMF.  Many of you reading this message have already donated in support of this cause. For that, we thank you from the bottom of our hearts. Together, we have raised more than $15,000 to support the NMF in their mission and efforts to raise money for Marfan Syndrome research, awareness, and education.

Please consider donating to support this cause that is so important to us!

Thank you!

Jon and Beth Gould

 

 

 

The Marfan Foundation wrote -

The Marfan Foundation is proud of be a charity partner of the 2016 TCS New York City Marathon. We will have 9 people running for victory and raising funds and awareness of Marfan syndrome and related disorders.

Marfan syndrome is a life-threatening genetic disorder that most seriously affects the heart, blood vessels, and eyes, so we do everything possible, including research, advocacy, and education, to make sure people can live longer, fuller lives. 

Please support our marathon runners. Their efforts allow the Foundation to do our life-saving work. Go Team Victory!

$3,250

MONEY RAISED
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  • Millie

    $250

  • Chris and Gretchen Dodgion

    $100

  • The Warners

    $25

  • Bohlen Family

    $50

  • Anonymous

    $100

  • Alex, Will, and Kalli

    $150

  • Strelow Family

    $25

  • Joe and Rocio Froehlich

    $250

  • The stepke family

    $250

  • The Schroeder Family!

    $100

  • Ava Vivian Sara Matt

    $250

  • Matthew and Maureen Goldblatt

    $250

  • John Litscher

    $50

  • The Deuser Family

     

  • Jo & Ralph Gould

    $400

  • Andrew and Stacy Wright

     

  • Jocelyn Kessler

    $25

  • The Art family

    $100

  • Chuck and Heather Heise

    $250

  • Offline Donations

    $50

  • Fitzgerald family

    $140

  • The Carlton Family

    $100

  • Deborah Mortonson

    $50

  • Wowk Family

    $100

  • Anonymous

    $50

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  •  
  •  
 

108% Raised of$3,000 Goal

The Team: $77,170 TOTAL RAISED SO FAR

Fundraiser Title

Sara Maher

Amount Raised

$35,670

 

102% Raised of$35,000 Goal

Fundraiser Title

The Brothers Garrett

Amount Raised

$14,650

 

147% Raised of$10,000 Goal

Fundraiser Title

Hillary Sapanski

Amount Raised

$10,201

 

204% Raised of$5,000 Goal

Fundraiser Title

Ezra Jennings

Amount Raised

$6,288

 

126% Raised of$5,000 Goal

Fundraiser Title

Cara Brobst

Amount Raised

$5,401

 

108% Raised of$5,000 Goal

Fundraiser Title

Jon Gould

Amount Raised

$3,250

 

108% Raised of$3,000 Goal

Fundraiser Title

The Marfan Foundation

Amount Raised

$1,660

 

2% Raised of$75,000 Goal

Fundraiser Title

Lisa Lore

Amount Raised

$50

Donor Comments

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

Wowk Family

Wowk Family

DONATION: $100

2 years ago

Deborah Mortonson

Deborah Mortonson

DONATION: $50

The Mortonson family 2 years ago

The Carlton Family

The Carlton Family

DONATION: $100

2 years ago

Fitzgerald family

Fitzgerald family

DONATION: $140

2 years ago

Offline Donations

Offline Donations

DONATION: $50

2 years ago

Chuck and Heather Heise

Chuck and Heather Heise

DONATION: $250

This is awesome!! Go Jon!! 2 years ago

The Art family

The Art family

DONATION: $100

2 years ago

Jocelyn Kessler

Jocelyn Kessler

DONATION: $25

Go Jon!! 2 years ago

Andrew and Stacy Wright

Andrew and Stacy Wright

2 years ago