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The Shepherd's Gift: GM1 for HD

Team Member: Susan Holler

Susan's Photo

THE STORY:

We have worked for over 2 decdes to bring ovine GM1 to a clinical trial.  The potential it has to improve the quality of life for those who struggle with devastating neurologic diseases keeps us working to get it approved for human pharmaceutical use.  As we have gotten to know families who live with HD we are more dediicated than ever to get it approved. The courage and faith of these families is inspirational.  The FDA pre-IND approval of the sheep source for GM1 ganglioside production was necessary for us to have a chance with the NIH/NINDS CREATE grant submission. Hopefully this funding will keep us moving forward. Unfortunately, without some type of outside investment, the pace will be much slower.  You can help by supporting this crowdrise grassroots effort to improve the quality of life for HD families. In Isaiah 40,verse 31, we are told, “But those who trust in the Lord will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint”. The path forward to the clinic is laid out right in front of us. It’s just gonna be one step at a time. All we have to do is trust. 

 

$275

MONEY RAISED
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  • Susan Holler

    $25

  • Rick and Carolyn Lambert

    $100

  • Sharon Waller

    $100

  • Jeff Waller

    $50

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Organized by

Greg Taylor

This is a direct to organizer fundraiser.

Fundraise for this Campaign

The Team: $11,070 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Nicki Ketcham Oss

Amount Raised

$6,800

 

136% Raised of $5,000 Goal

Fundraiser Title

Mike Ludlam

Amount Raised

$3,720

Fundraiser Title

Susan Holler

Amount Raised

$275

Fundraiser Title

Anna Uhrich Hilton

Amount Raised

$275

 

3% Raised of $10,000 Goal

Fundraiser Title

Traci Pratt

Amount Raised

$0

 

0% Raised of $5,000 Goal

Fundraiser Title

Greg Taylor

Amount Raised

$0

 

0% Raised of $5,000,000 Goal

Fundraiser Title

Tara Hansen

Amount Raised

$0

Fundraiser Title

Melissa De Boer

Amount Raised

$0

Donor Comments

Jeff Waller

Jeff Waller

DONATION: $50

3 years ago

Sharon Waller

Sharon Waller

DONATION: $100

3 years ago

Rick and Carolyn Lambert

Rick and Carolyn Lambert

DONATION: $100

3 years ago

Susan Holler

Susan Holler

DONATION: $25

We have worked for over 2 decades to bring GM1 to clinical trial. We are hopefully that 2015 is the year it will happen!! 4 years ago

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